Child Health Nursing BT Basavanthappa
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Introduction to Child Health NursingChapter 1

 
INTRODUCTION
Children are the future of our society and special gifts to the universe. Today's children are the tomorrow's citizens. Taking care of children and their families has always been challenging, but has become increasingly more complex. Children are the most important age group in all societies. Health status and health behavior of later life are laid down at this stage. Child health care should include specific biological and psychological needs that must be met to ensure the survival and healthy development of the child, the future adult. The term ‘pediatrics’ is derived from the Greek word Pedio-pais, paidos meaning ‘a child’ or denoting a relationship to a child (pedo), iatrike meaning ‘surgery’ or ‘medicine’, i.e. treatment and ics, the suffix of a subject of science. It has come to mean the science of child care in the present day and includes planned preventive and curative care of children. So, pediatrics is the branch of medical science that deals with the child's development and care and also with diseases of childhood and their treatment. Thus pediatrics, which is synonymous with child health in the branch of medical science that deals with the care of children from conception to adolescence. Similarly, pediatric nursing or child health nursing is an important branch of nursing, which deals with the care of children from conception through childhood including adolescence.
The nurse preparing to care for today's and tomorrow's children and child bearing families faces vastly different responsibilities and challenges that did the child health nurse of even a decade ago. Nurses and other health professionals are becoming increasingly concerned with much more than the care at risk and sick children. Health teaching, preventing illness and promoting most desirable or satisfactory (optimal), physical, developmental and emotional health have become a significant part of contemporary nursing. The contemporary understanding of child health nursing is the science of child care, preventive as well as curative. Therefore, child health nursing pediatric nursing) is concerned with the health of infants, children and adolescents, their growth and development and their attaining full potential as adults. The child health nurses responsibility is not only to care of the physical, mental and emotional health from conception to maturity, but also to demonstrate concern for the social, environmental and cultural influences that are known to have considerable fallout on children and their families.
Now, scientific and technological advances have reduced the incidence of communicable disease and helped to control metabolic disorders such as diabetes. As a result, more health care is provided outside the hospital. Patients now receive health care in the home, at schools and clinics and from their primary care provider. Prenatal diagnosis of birth defects, transfusions, other treatments for the unborn fetus and improved life-support systems for premature infants are, but a few examples of the rapid progress in child care.
Tremendous sociologic changes have affected attitudes toward and concepts in child health. Now, society is a population of highly mobile persons and families. The women's movement has focused new attention on the needs of families in which the mother works outside the home. Many people have come to regard health care as a right, not a privilege and expect to receive fair value for their investment. In addition, the demand for financial responsibility in health care has contributed to shortened hospital stays and alternative methods of health care delivery. The reduction in the incidence of communicable and infectious diseases has made it possible to devote more attention to such critical problems as preterm birth, congenital anomalies, child abuse, learning and behavior disorders; developmental disabilities and chronic illness. Research in these areas continues; as these findings become available, nurses will be among the practitioners, who will help to translate this research into improved health care for children and families. However, nurses’ ability to translate the relevant medical research into practice is based on their understanding of the predictable, 2but variable phases of a child's growth and development and on their understanding of and sensitivity to the importance of family interactions.
 
EVOLUTION OF CHILD HEALTH NURSING
Historically, in all the regions of the world, the emphasis on the concept of pediatrics has been limited to the curative aspects of diseases peculiar to the child. Hippocrates of Greece (460–370 BC), the father of modern medicine, devoted a great part of his treatise to children and made many significant observations on diseases found in children. Galen of Rome (AD 129–200) wrote extensively, in Greek, on the care of infants and children. Soraneus in Greece in the 2nd century AD, wrote the first known manuscript devoted to pediatrics and incidentally, was the first author who advocated the famous finger-nail test for the purity of milk. The Arab physician Rhazes (AD 850–923) devoted much of his treatise to the subject of childhood illnesses. The first printed book on pediatrics was in Italian (1472)—Bagallarder's Little Book on Diseases in Children. The first English book on children's diseases called Book of Children was written by Thomas Phaer in AD 1545.
Pediatrics took birth over a century back in the prosperous countries of the West. It is, however, too much young in India and other countries of the Third world. Technological advances account for many changes in this last 50 years, but sociologic changes particularly society's view of the child and child needs, has been just as important.
Pediatrics is a relatively new medical specialty, developing only in the mid-1800s. In colonial times, epidemics were common and many children died in infancy or childhood. In some cases, disease wiped out entire families. Families were large to compensate for the children, who did not live to adulthood. Children were viewed as additional hands to help with the family farm chores. Sick children often were cared for by the adults in the family or by a neighbor with a reputation of being able to care for the sick.
The first children's hospital opened in Philadelphia in 1855. Until that point in Western civilization, children were not considered important, except as contributors to family income. Hospitalized children were cared for in hospitals as adults were, often in the same bed. Unfortunately, early institutions for children were notorious for their unsanitary conditions, neglect and lack of proper infant nutrition. Well into the 19th century, mortality rates were commonly 50% to 100% among institutionalized children in asylums or hospitals.
Abraham Jacobi, a German-born physician, has been recognized as the father of pediatrics. Under his direction, several New York hospitals opened pediatric units. He helped to found the American Pediatric Society in 1888. During the early 1900s, intractable diarrhea was a primary cause of death in children's institutions. Initiation of the simple practices of boiling milk and isolating children with septic conditions, lowered the incidence of diarrhea. This practice of pasteurizing milk was instrumental in decreasing the rate of death in children.
In this context, it is interesting to note that India with its long history of civilization produced the Rigveda, which carries the earliest medical information on man and the Atharvaveda (1500 BC), contained the first documents on Indian medical herbs. The world's first pediatricians Kashyapa and Jeevaka were Indians, who lived in the 6th century BC and whose pioneering works on child care and children's diseases are as relevant today, as many of the modern concepts of child health. The first manuscripts on the management of children, some years before Christ, were Kashyapa Samhita and Vridha Jeevakiva Tantra, both scholarly treatises on child care and children's diseases, brought out by Jeevaka, Kashyapa's pupil. The chapter on Kaumarabrita (i.e. service to children) in his Sushruta Samhita, the classical encyclopedia of Ayurvedic medicine, was perhaps the first record of pediatrics anywhere in the world. The colossal work was written by Sushruta (the Indian Hippocrates) and contains many aspects of child rearing, such as infant feeding, diseases of childhood, including exanthematous fevers, diseases of the liver, etc. Charaka, the court physician in Peshawar, wrote at length on the care and management of the newborn in his Sharira Sthana and Ashtanga Hridaya, in the 4th century AD. All these treatises and monumental works emphasize the modern WHO definition of health as ‘a state of complete physical, mental and social well-being and not merely the absence of disease and infirmities’. They agree on ‘Dharmarthakamamokshanam arogyam moolam uttamam’: meaning, health at the root of ethical living, livelihood, family life and spiritual striving. The siddha system of medicine in South India developed pari passu with Ayurveda and their section on pediatrics held the modern concept that service to the child starts from the moment of conception. Their materia medica of herbs is rich in its repertoire of cure.
The historical perspective of pediatric nursing includes the devastating epidemics that affected children in the past, societal trends in our country, changes in the health care system and federal and state regulations. This discussion will provide a brief overview of the evolution of pediatric nursing. By reviewing these historical events, pediatric nurses can gain a better understanding of the current and future status of pediatric nursing.
In past, the health of the country was poorer than it is today; mortality rates were high and life expectancy was short. Over time, changes occurred that focused attention on the health of children. In 1870, the first pediatric professorship 3for a physician was awarded in the United States to Abraham Jacobi, who is known as the father of pediatrics. For the first time, the medical community realized there was a need to provide specialized training and education about children to health care providers. In 1889, Jacobi established milk distribution centers, which provided mothers with uncontaminated milk for their sick infants and also, stressed the importance of pasteurization. This one intervention led to a decrease in infant deaths.
In the early 1900s, Lillian Wald established the Henry Street Settlement House in New York City; this was the start of public health nursing. This facility provided medical and other services to poor families. These services included home nurse visits to teach mothers about health care. Health care personnel were trained to take care of children in hospitals, but parents of hospitalized children were discouraged from visiting to prevent the spread of infection. Restricting parents from being involved in their child's care was also thought to minimize emotional stress. Nursing in public schools began in 1902 with the appointment of Lina Rogers as a full-time public school nurse in New York. A professional course in pediatric nursing was started in the early 1900s at Teachers College of Columbia University.
The turn of the last century brought new knowledge about nutrition, sanitation, bacteriology, pharmacology, medication and psychology. Penicillin, corticosteroids and vaccines, which were developed during this time, assisted with the fight against communicable diseases. By the later part of the 20th century, technological advances have significantly affected all aspects of health care. These trends have led to increased survival rates in children. However, many children who survive illnesses that were previously considered fatal are left with chronic disabilities. For example, before the 1960s, extremely premature infants did not survive, because of the immaturity of their lungs. Mechanical ventilation and the use of medications to foster lung development have increased survival rates in premature infants, but survivors are often faced with a myriad of chronic illnesses such as bronchopulmonary dysplasia, retinopathy of prematurity, cerebral palsy or developmental delay. This increased survival has resulted in a significant increase in chronic illness relative to acute illness as a cause of hospitalization and mortality.
After World War I, a period of strict asepsis began. Babies were placed in individual cubicles and nurses were strictly forbidden to pick up the children, except when necessary. Crib sides were draped with clean sheets, leaving infants with nothing to do, but stare at the ceiling. The importance of toys in a child's environment appears not to have been recognized; besides, it was thought that such objects could transmit infection. Parents were allowed to visit for half an hour or perhaps 1 hour each week and they were forbidden to pick up their children under penalty of having their visiting privileges revoked. Despite these precautions, high infant mortality rates continued. One of the first people to suspect the cause was Joseph Brennaman, a physician at Children's Memorial Hospital in Chicago. In 1932, he suggested that the infants suffered from a lack of stimulation; other concerned child specialists became interested. In the 1940s, Rene Spitz published the results of studies that supported his contention that deprivation of maternal care caused a state of dazed stupor in an infant. He believed this condition could become irreversible, if the child were not returned to the mother promptly. He termed this state ‘anaclitic depression.’ He also coined the term hospitalism, which he defined as “a vitiated condition of the body due to long confinement in the hospital”. Later the term came to be used almost entirely to denote the harmful effects of institutional care on infants. Another physician, Bakwin, found that infants hospitalized for a long time, actually developed physical symptoms that he attributed to a lack of emotional stimulation and a lack of feeding satisfaction.
Childhood period can be customarily divided for purpose of effective care into the different age groups, i.e. infancy, preschool, school age and adolescence.
 
RIGHTS OF THE CHILD
The United Nations (UN) Declaration of the Rights of the Child as far back as in 1959, to which India is a signatory, gives the child pride of place, as also makes the people aware of his needs and rights and their duties towards him. A non-governmental organization (NGO) Defence for Children International, Geneva, has been in operation, since 1979 to ensure ongoing, systemic international action, especially directed towards promoting and protecting the Rights of the Child. November 14 is observed as Universal Children's Day, ever since 1954. The UN has assigned the responsibility to promote this annual day to the United Nations International Children's Emergency Fund (UNICEF).
The ten basic rights of children as per United Nations Declaration of 1959 are as follows:
  • The child shall be brought up in a spirit of understanding, friendship, peace and universal brotherhood and shall not be exposed to racial, religious or other forms of discrimination.
  • The child shall be protected against all forms of neglect, cruelty, exploitation and traffic and shall not be permitted to be employed before an appropriate minimum age.
  • The child shall, in all circumstances, be among the first to receive protection and relief.
  • The child entitled to free and compulsory elementary education and such an education as is in his best interests for which the parents are to be responsible.
  • 4The child is entitled to grow up in an atmosphere of affection and moral and material security, with public authorities taking care of children without families or other support.
  • The physically, mentally or socially handicapped child shall be entitled for special treatment, education and appropriate care.
  • The child shall have the right to adequate nutrition, housing, recreation and medical services, including special health care and protection and postnatal care for the mother.
  • The child shall be entitled to a name and a nationality.
  • The child shall enjoy special protection to be able to develop in every way in conditions of freedom and dignity.
  • All children—irrespective of their race, color, sex or creed of their parents—shall be entitled to these rights.
As stated earlier, India was a signatory to this declaration to give the child pride of place and to make the people aware of the rights and needs of children and duties towards them. To sum up, the ten basic rights of the child are as follows:
  1. Right to develop in an atmosphere of affection and security and protection against all forms or neglect, cruelty, exploitation and traffic.
  2. Right to enjoy the benefits of social security, including nutrition, housing and medical care.
  3. Right to a name and nationality.
  4. Right to free education.
  5. Right to full opportunity for play and recreation.
  6. Right to special treatment, education and appropriate care, if handicapped.
  7. Right to be among the first to receive protection and relief in times of disaster.
  8. Right to learn to be a useful member of society and to develop in a healthy and normal manner and in conditions of freedom and dignity.
  9. Right to be brought up in a spirit of understanding, tolerance, friendship among people, peace and universal brotherhood.
  10. Right to enjoy these rights, regardless of race, color, sex, religion, national or social origin.
Since 1989, the realization that children have special needs and hence, the special rights has given birth to an international law in the shape of Convention on the Rights of the Child (CRC). The provisions of the Convention were confirmed in 1990 by the World Summit for Children. Now, the Convention is credited as the most widely ratified human rights treaty in the world.
Empowered with 54 Articles, the Convention defines children as people below the age 18 years (Article 1), whose ‘best interests’ must be taken into account in all situations (Article 3). It protects children's right to survive and develop (Article 6) to their full potential and among its provisions are those affirming children's right to the highest attainable standard of health care (Article 24) and to express views (Article 12) and receive information (Article 13). According to Article 28, the states are obliged to make primary education compulsory and available to all children. Children have a right to be registered immediately after birth and to have name and nationality (Article 31) and to protection from all forms of exploitation and sexual abuse (Article 34). Notable advances have been made during the last decade of the 20th century and the subsequent years of the present, i.e. 21st century for the welfare of children, including laws to safeguard them from suffering and exploitation, near eradication of poliomyelitis, reduction of morbidity and mortality from neonatal tetanus and measles, fall in vitamin A deficiency blindness, reduction in deaths from diarrheal dehydration, sensitization of people against child labor and child abuse and neglect, etc. Now, more children are born healthy and more are immunized, more can read and write, more are free to learn, play and simply live as children than would have been thought possible, even a short decade ago. This is the direct result of translation of the commitments made in the Convention into concrete action. Yet, for all the gains made, violations of children's rights, particularly in the developing world, continue to be breathtaking, ranging from failure to register births and provide healthcare and education to exploitation in the form of child labor, abuse and neglect and involvement of adolescents in terrorist and militancy-related armed conflicts.
Undoubtedly, there is a strong case for a social movement to fan the flame that burned over a decade ago for rights of the child and the adolescent for smooth navigation into adulthood. This is particularly a ‘must’ for advancing human development in the developing countries. And, those of us responsible for health and care of children and adolescents must in particular take it as a call for vision and leadership to realize a new dream of humankind, free from poverty, disease and discrimination.
 
GOALS OF CHILDREN HEALTH
The World Summit for children (1990) agreed on a series of specific goals for improving the lives of children, including measurable progress against malnutrition, preventable diseases and illiteracy. The vital vulnerable years of childhood should be given priority on society's concerns and capacities. A child has only one chance to develop normally and demands protection and commitment that never be superseded by any other priorities. The realization that children have special needs and hence, the special rights has given birth to an international law in the shape of convention on the ‘Rights of 5the Child’. The provisions of the convention were confirmed in 1990 by the World Summit for Children.
The convention defines children as people below the age 18 years, whose best interests must be taken into account in all situations. It protects children's right to survive and develop to their full potential with highest attainable standard of health care.
The social goals that have been accepted by almost all nations during 1990 World Summit for Children were as follows:
 
Overall Goals (1990-2000)
  1. A one-third reduction in under-five death rates (or to 70 per 1,000 live births, whichever is less).
  2. A halving of maternal mortality rates.
  3. A halving of severe and moderate malnutrition among the world's under-fives.
  4. Safe water and sanitation for all families.
  5. Basic education for all children and completion of primary education by at least 80 percent.
  6. A halving of adult illiteracy rate and achievement of equal educational opportunity for males and females.
  7. Acceptance in all countries of the convention on the rights of child, including improved protection for children in especially difficult circumstances.
 
Protection for Girls and Women
  • Family planning information and services to be made available to all couples to prevent unwanted pregnancies and birth, which are ‘too many and too close’ and to women who are ‘too young or too old’.
  • All women should have access to antenatal care, a trained attendant during child birth and referral facilities for high-risk pregnancies and obstetrical emergencies.
  • Universal recognition of special health care and nutritional needs of females during early childhood, adolescence, pregnancy and lactation.
 
Nutrition
  • A reduction in the incidence of low birth weight (below 2.5 kg) to less than 10 percent.
  • A one-third reduction in iron deficiency anemia among women.
  • Elimination of vitamin ‘A’ deficiency and iodine deficiency disorders.
  • Information to all families about the importance of supporting women in exclusive breastfeeding for first 4 to 6 months of a child's life.
  • Growth monitoring and promotion need to be institutionalized in all countries.
  • Information to increase awareness about household food security in all families.
 
Child Health
  • Eradication of poliomyelitis.
  • Elimination of neonatal tetanus and 90 percent reduction in measles cases and 95 percent reduction in measles deaths.
  • Achievement and maintenance of at least 90 percent immunization coverage to infants and universal tetanus immunization for women in the child-bearing years.
  • A halving of child deaths caused by diarrheal diseases and 25 percent reduction, if its incidence.
  • A one-third reduction of child deaths caused by acute respiratory infections.
  • Elimination of guinea worm disease.
 
Education
  • Expansion of primary school education and improvement of essential knowledge and life-skills of all families by mobilization of present days, vastly increased communication capacity.
 
CHILD HEALTH MOVEMENTS IN INDIA
Children are our future and our most precious resources. Today's children are the citizens of tomorrow's world. In other words, the children are the budding human resources and the future citizens of the nation. Healthy children are not only assets, but also the stepping stone to build a strong and prosperous nation. Their survival, protection and development is a prerequisite for the future development of humanity. Every child represents a unit of human capital. He/she has the potential to grow into a productive adult and contribute to the economic and social development of the country. Further, every child has a right to grow and realize his/her full potential. It is, therefore, a moral obligation of every society to make provisions for the holistic development of its children. Nations all over the world/universe have come to recognize that the most effective strategy for building human resource is to improve the conditions of its children, ensuring and safe-guarding the development of children has thus, become an important national goal of all countries.
As children constitute one third of total population, it becomes imperative to monitor the health status of children in the country and also taking care children in very important issue, because children are most vulnerable to malnutrition, 6morbidity and mortality. In addition, there is non-availability of potable water, sanitation, health care facilities and are neglected by illiterate parents. There is little or no access to intellectual stimulation. All these conditions are non-conductive for the growth and development of the child and pose serious threat to the development of human resources. Nurses are highly privileged to take care of the children from conception to birth and also birth to 12 to 18 years.
In any nation, mother and children constitute a priority group, which consists about 70 percent population in India, women of the child-bearing age (15 to 44 years) constitute 19 percent and children under 15 years of age about 40 percent of the total population. Together, they constitute nearly 59 percent of the total population. By virtue of their numbers, mothers and children are the major consumers of health services. And they make also a vulnerable or special risk group. The risk is connected with child bearing in the case of women and growth and development and survival in the case of infants and children. Where as 50 percent of all death in the developed world are occurring among people over 70 years of age and the same proportion of death occurring among children, during the first 5 years of life in the developing world. Much of the sickness and death among mothers and children is largely preventable.
In practice, mother and child must be considered as one unit. It is because:
  • During antenatal period, the fetus on the part of the mother. The period is about 280 days. During this period, the fetus obtains all the building material and oxygen from the mother's blood
  • Child health is closely related to maternal health. A healthy mother brings forth a healthy baby. There is a less chance for a premature birth, stillbirth or abortion
  • Certain diseases and conditions of the mother during pregnancy (e.g. syphilis, German measles, drug intake) are likely to have their effects upon the fetus
  • After birth, the child is dependent upon the mother. At least upto the age of 6 to 9 months, the child is completely dependent on the mother for feeding. The mental and social development of the child is also dependent upon the mother. If mother dies, the child's growth and development are affected (maternal deprivation syndrome)
  • In the care, cycle of women, there are few occasions when service to the child is not simultaneously called for
  • The mother is also the first teacher of the child.
It is for these reasons, the mother and child are treated as one unit.
Maternal and child health services were first organized in India in 1921, by a committee of ‘the lady Chelmsford League’ which collected funds for child welfare and established demonstration services on an all India basis. In 1931, Indian Red Cross Society started maternity centers in different parts of the country through its ‘Maternal and Child Welfare Bureau’. In 1946, the Health Survey and Development Committee headed by Sir Joseph Bhore, emphasized the need for maternal and child welfare services and recommended that priority should be given for Maternal and Child Health (MCH) services in the National Health Service.
The constitution of India envisages the establishment of new social order based on equality, justice and dignity of the individual. Among others, it directs the state to regard and improvement in the public health in one of the primary duties and aims at securing the health and strength of the workers, men and women and the tender age of children are not abused and that citizens are not forced by economic necessity to enter avocations unsuited to their age or strength and that children are given opportunities and facilities to develop in a healthy manner, in conditions of freedom and their childhood and youth are protected against exploitation and against moral and material abandonment. And the state shall regard the raising of the level of nutrition and standard of living of its people and improvement of public health as among its primary duties.
 
NATIONAL POLICY FOR CHILDREN
The Government of India adopted a National Policy for Children in August 1974, keeping in view the United Nations Declaration of the Rights of the Child and the constitutional provisions.
The policy declares: “It shall be the policy of the state to provide adequate services to children, both before and after birth and through the period of growth, to ensure their full physical, mental and social development. The state shall progressively increase the scope of such services so that, within a reasonable time, all children in the country enjoy optimum conditions for their balanced growth.”
According to the declaration, the development of children has been considered as integral part of national development. The policy recognizes children as the ‘nation's supremely important asset’ and declares that the nation is responsible for their ‘nurture and solicitude’. It also emphasizes the priorities of children's program and special focus on child health, child nutrition and welfare of the handicapped and destitute children.
A number of programs were introduced by the Government of India, after the declaration of National Policy for Children. The important programs are Integrated Child Development Services (ICDS) scheme, programs of supplementary feeding, nutrition education, production of nutritious food, welfare of handicapped children, national children's fund, Child Survival and Safe Motherhood (CSSM) programs, etc.
7The principles of India's National Policy for Children are as follows:
  • A comprehensive health program for all children and provision of nutrition services for children
  • Provision of health care, nutrition and nutrition education for expectant and nursing mothers
  • Free and compulsory education up to the age of 14 years, informal education for preschoolers and efforts to reduce wastage and stagnation in schools
  • Out of school education for those not having access to formal education
  • Promotion of games, recreation and extracurricular activities in schools and community centers
  • Special programs for children from weaker sections
  • Facilities for education, training and rehabilitation for children in distress
  • Protection against neglect, cruelty and exploitation
  • Banning of employment in hazardous occupations and in heavy work for children
  • Special treatment, education, rehabilitation and care of physically handicapped, emotionally disturbed or mentally retarded children
  • Priority for the protection and relief of children in times of national distress and calamity
  • Special programs to encourage talented and gifted children, particularly from the weaker sections
  • The paramount consideration in all relevant laws is the ‘interests of children’
  • Strengthening family ties to enable children to grow within the family, neighborhood and community environment.
The Children Act, 1960 (amended in 1977) in India, provides for the care maintenance, welfare, training, education and rehabilitation of the delinquent child. It covers the neglected, destitute, socially handicapped, uncontrollable, victimised and delinquent children. In Article 39(f), the constitution of India provides that ‘the state shall in particular direct its policy towards securing that childhood and youth are protected against moral and material abandonment’.
The Juvenile Justice Act, 1986, provides a comprehensive scheme for care, protection, treatment, development and rehabilitation of delinquent juveniles. The new Act has come into force from 2nd October 1987, after rectification of the inadequacies of the Children Act (1960).
The needs of children and our duties towards them are enshrined in our constitution. The relevant articles are as follows:
  • Article 24 prohibits employment of children below the age of 14 years in factories
  • Article 39 prevents abuse of children of tender age
  • Article 45 provides the free and compulsory education for all children, until they complete the age of 14 years.
Other important Acts for child welfare are: The Child Labor (Prohibition and Regulation) Act, 1986, The Child Marriage Restraint Act, 1978 and The Hindu Adoptions and Maintenance Act, 1956.
Special attention has been given to the welfare of children in the 5-year plans by the Government of India. Various schemes and programs have been introduced and implemented to achieve the goals of child health services.
Healthy children are future healthy citizens of the countries. So, every attempts should be made towards better tomorrow for better survival of this precious group and to help them to grow into healthy adult. Promotion of child health should receive priority attention in all levels as new challenge of the 21st century. WHO, emphasizes on healthy mothers and children. The aims and objectives, is to create momentum that compel national governments, international community, civil society and individuals to take action to ensure the health and well-being of mothers and children. These can be achieved by raising awareness, increasing understanding about the existing solutions and generating movement to stimulate collective responsibility and action to improve the survival, health and well-being of all mothers and children.
National Policy for Children (1977): It shall be the policy of the state to provide adequate services to children, both before and after birth and through the period of growth to ensure their full physical, mental and social development. The state shall progress invely increases the scope of such services, so that within a reasonable time, all children in the country enjoy optimum conditions for their balanced growth. It has been also indicated priority in program formulations. In formulating programs in different sectors, priority shall be given to programs relating to:
  • Preventive and promotive aspects of child health
  • Nutrition for infants and children in the preschool age
  • Maintenance education and training of orphans and destitute children
  • Creches and other facilities for the care of children of working and ailing mothers
  • Care, education, training and rehabilitation of handicapped children.
The Policy on Family Welfare Program (1977), also stated that, it is of utmost importance that adequate, antenatal and postnatal care is made available to pregnant mother. To this end, a comprehensive scheme of training of indigenous midwives (Dais) will be implemented. Under it, maternity services will be made available to all mothers who may need them. The program of immunizing children against common diseases such as whooping cough, diphtheria and tetanus will be expanded further. And there is direct correlation between the illiteracy and fertility and between infant and maternal mortality and the age at marriage is well established 8by demographic studies. While on the hand, Government will pursue its policy of according high priority to the improvements or women's education level, both through formal and non-formal channels, it will also bring legislation for raising the minimum age of marriage for girls to 18 and for boys to 21. This has been done through Child Marriage Restrain Act 1978.
The joint conference of Central Councils of Health and Central Family Welfare Council at its meeting held in April 1979, among other things have resolved that as a part of the package of family welfare. This calls for not only much more expanded immunization and prophylaxis against nutritional deficiency diseases, but also efforts to combat major causes of such mortality, namely diarrheal and respiratory diseases and malnutrition. Alma-Ata Declaration on primary health care (1978) stated that primary health care includes at least education concerning prevailing health problems and the methods of prevailing and controlling them. Promotion of food supply and proper nutrition, adequate supply of safe water and basic sanitation, maternal and child health care, including family planning, immunization against major infectious diseases, prevention and control of total endemic diseases, appropriate treatment of common diseases and injury and provision of essential drugs.
In 1980, the Government of India signed the Character for Health Development proposed by the WHO. The preamble of the Character reads:
A nation's greatest asset is people, the more so, when they are endowed with the highest obtainable standard of health, which promotes creativeness, dynamism, determination, productivity and self-confidence to move ahead. Health is a basic requirement not only for fulfilment of human aspirations, but also for the enjoyment of all mankind of a better quality of life. It is also indispensable for a balanced development of the individual within the family and as part of the community and the nation. There is an urgent need to mobilize and make effective use of all the human resources available in our countries, if we are to make rapid economic and social progress. Therefore to meet this need, we the Government represented by the undersigned, have come together to draw up an effective plan for improving the status of health of our people. Article 6 spells out the specific objectives. The reduction of mortality and morbidity among infants and children, the improvement of the health of women, especially mothers and the regulation of fertility, so as to achieve better health and implement national population policy. According to WHO, the MCH services should ensure that:
Every Child, wherever possible, lives and grows up in a family unit, with love and security, in healthy surroundings, receives adequate nourishment, health supervision and efficient medical attention and is taught and the elements of healthy living.
Every expectant and nursing mother maintaining good health, learns the art of child care, has a normal delivery and bears healthy children. Maternity care in the narrower sense, consists in the care of the pregnant women, safe delivery, post-natal care, care of her newly-born infant and the maintenance of lactation. In the wider sense, it begins much earlier in the measures aimed to promote the health and well-being of the young who are potential parents and to help them to develop the right approach to family life and to the place of family in the community. It should also include guidance in parent-craft and in problems associated with infertility and family planning.
Under the constitution of India, the subject of health facilities, including their planning, establishment and admini-stration, falls under the purview of respective governments of States of the Union. However, Government of India has from time to time introduced National Health Program, which are either centrally sponsored—i.e. part of expense is met by the Central Government or wholly funded by the center, Ministry of Health, Government of India, with the help of Central Councils of Health and Family Welfare has taken several initiatives in launching programs aimed at controlling or eradicating diseases, which cause considerable morbidity and mortality in India. New programs are being added and existing ones modified, in response changing epidemiology of disease, host or parasites.
Children under the age of 5 years are grouped with the mothers, considering as vulnerable and risk group comprising about 32 percent of total population in India.
The MCH services is the method of delivering health care to these special groups. The MCH services contain the preventive, promotive, curative and social aspects of obstetrics, pediatrics, family welfare, nutrition, child development and health education. The ultimate objective of MCH services is lifelong health. The specific objectives for the services include reduction of morbidity and mortality rates for mother and children and promotion of reproductive health along with child health. Promotion of physical and psychological development of the child within the family can be possible by family participation in the comprehensive care of children through the MCH services.
The components of MCH services include six sub-areas, i.e. maternal health, family planning, child health, school health, care of handicapped children and care of children in special setting such as day care centers. The MCH services, at present, are provided through Reproductive and Child Health (RCH) program. The RCH program incorporates the components related to CSSM, family planning and prevention of reproductive tract infections (RTIs)/sexually transmitted diseases (STDs) and acquired immunodeficiency syndrome (AIDS). The services are provided in client-oriented, target-free, demand driven, high quality, participatory and 9decentralized approaches on the basis of needs of community. Other than RCH program, various health programs are initiated by the Government of India to improve the survival of children. NGOs and child welfare organizations also contributing towards better child health. Other child health services include ICDS scheme, Under-5 clinics, school-health services, postpartum services through postpartum (PP) units, baby-friendly hospital initiative, child guidance clinic, etc.
Child health services are delivered through Anganwadi centers (ICDS-center) at village level, subcenter clinics, primary health care (PHC) clinics, outreach services by home visit and camps and in hospital as indoors and outdoors. The child care is planned in various health institutions by the health workers in integrated and risk approach. Primary health care is now recognized as a way of making essential health care available to all, including children, by the multipurpose health workers, professional health workers, voluntary workers and field workers, like community health guides, traditional birth attendants, Anganwadi workers, etc. The services are available both in urban and rural areas through different infrastructures. The specific low-cost, simple measures are organized for the child health care through various approaches for saving lifes of millions of children on priority basis.
 
National Program Related to Mother and Child Health
The important National Health Programs are as follows:
  1. Maternal and Child Health Program (MCH)
  2. Integrated child Development Service Scheme (ICDS)
  3. Child Survival and Safe Motherhood Program (CSSM).
  4. Reproductive and Child Health Program (RCH).
Programs related to communicable diseases:
  1. Disease eradication programs
    1. National Malaria Eradication Program
    2. National Leprosy Eradication Program
    3. National Yaws Eradication Program
    4. National Polio Eradication Program
    5. National Smallpox Eradication Program (succeeded)
    6. National Guinea Worm Eradication Program (succeeded).
  2. Disease control programs
    1. National Filaria Control Program
    2. National Tuberculosis Control Program
    3. National AIDS Control Program
    4. National STD Control Program
    5. National Diarrheal Disease Control Program
    6. National ARI control Program
    7. National Cholera Control Program
    8. National Trachoma Control program.
  3. National programs related to control of nutritional deficiencies and disorders
    1. Vitamin A Prophylaxis Program
    2. Nutritional Anemia Control Program
    3. National Iodine Deficiency Disorders Control Program
    4. Special Nutrition Program
    5. Balwadi Nutrition Program
    6. Integrated Child Development Scheme (ICDS)
    7. School Mid-day Meal Program.
  4. National program related to control of non-communicable diseases
    1. National School Health Program
    2. National Cancer Control Program
    3. National Mental Health Program
    4. National Diabetes Control Program
    5. National Drug de-addiction program
    6. National Program for control of blindness.
 
MATERNAL AND CHILD HEALTH
By the term, maternal and child health, is meant promotive, preventive, curative and rehabilitative health care for mothers and children, including maternal health, child health, family planning, school health, handicapped/disabled children, adolescence and health aspects of child care in special settings such as a day care center.
The concept highlights the vital importance of considering the mother and the child as a single unit. The health of the child is by and large dependent on mother's health and attitudes. During care of the mother, attention to the child (both in utero and afterwards) is nearly always mandatory.
Specific aims and objectives of maternal and child health include:
  • Reduction in maternal, perinatal, infant and child mortality and morbidity
  • Promotion of reproductive health, e.g. postponing unwanted arrival of child, adequate spacing between two children and containment of population explosion
  • Promotion of physical and psychologic development of the child as also adolescent within the family.
The overwhelming problems affecting the mother and the child in developing countries at present revolve around the triad of malnutrition, infection and the hazards associated with uncontrolled reproduction/fertility.
The problem of malnutrition may be tackled in two ways. First, direct intervention includes such activities as supplementary feeding programs, fortification of food, distribution of iron, folic acid and vitamin tablets, nutrition education, etc. Second, indirect intervention includes such 10measures as control of communicable diseases through immunization, improvement of environmental sanitation, provision of clean drinking water, food hygiene, production of more food, education and primary health care.
Problem of infection in the mother, as well as the child needs to be tackled by such preventive measures as immunization of the mother and the child, personal hygiene and appropriate sanitary measures and education of the mother in medical measures like oral rehydration in diarrheal disease and febrile illnesses.
Problem of uncontrolled reproduction/fertility is the root cause of low standard of child health care. There is now amounting evidence that it contributes enormously to the low birthweight, severe anemia, abortion, antepartum hemorrhage and a high perinatal mortality. The solution lies in bringing MCH/family planning (FP) services to the doorstep of every household in the form of economic, convenient and safe birth-control devices and provisions for termination of unwanted pregnancies. Introduction of sex education for senior school children is claimed to indirectly contribute to the family planning drive.
Recognizing the importance of tackling the above said triad of malnutrition, infection and uncontrolled reproduction/fertility, MCH services in India are now offered as a ‘package’ to promote continuity of care and reduce number of visits the mother has to make for herself and for the child.
The components of this MCH care package include:
  1. Antenatal care
  2. Intranatal care
  3. Postnatal care
  4. Perinatal care
  5. Nutrition advice
  6. Immunization
  7. Primary health care
  8. Rational family planning.
 
 
Mortality Indicators of MCH Care
Mortality indicators employed for assessing the MCH care include:
  1. Maternal mortality rate
  2. Infant mortality rate
  3. Neonatal mortality rate
  4. Postneonatal mortality rate
  5. Perinatal mortality rate
  6. 1 to 4 years mortality rate.
Maternal mortality rate (MMR): It is defined as deaths per 1,000 live births of women, while pregnant or within 42 days of termination of pregnancy, irrespective of the duration and the site of the pregnancy, from any cause related to or aggravated by the pregnancy or its management, but not from accidental or incidental causes. The causes of maternal mortality may be direct obstetrical complications or indirect obstetrical complications which developed during or existed before pregnancy or which get precipitated/aggravated by physiologic effects of pregnancy. Toxemias of pregnancy, hemorrhage, sepsis and illegal abortions constitute leading causes of high MMR in India.
Infant mortality rate (IMR): It is defined as deaths per 1,000 live births of infants, who have not attained age of 1 year. Infant mortality is considered as a most sensitive index of the health and level of living of a people.
Neonatal mortality or early infant mortality: It means infant mortality, which occurs within the first 28 days of life. Its causes include immaturity, birth injury and difficult labor, congenital anomalies, placental and cord anomalies, diarrheal disease and acute respiratory infection.
Postneonatal mortality or late infant mortality: It means infant deaths, which occur in 1 to 12 months of age. Whereas neonatal mortality is usually due to prenatal and natal causes, postneonatal mortality is due to environmental influences like diarrheal disease, acute respiratory infection (pneumonia, influenza), communicable disease (pertussis), malnutrition, congenital anomalies and accidents.
In order to reduce IMR, a multipronged aggressive attack with spotlight on the following areas is needed:
  • Improvement in the nutritional status of the pregnant women
  • Immunization of pregnant women against tetanus
  • Family planning
  • Efficient MCH services
  • Improvement in living standard
  • Promotion of breastfeeding
  • Health education of the mother about child care.
Perinatal mortality rate (PMR): It is defined as the fetal deaths between 28th week of pregnancy and the end of the 1st week after birth per 1,000 live births plus stillbirths. Recently, it has been suggested that a birthweight of 1,000 g may be substituted for gestational age of 28 weeks. It has also been suggested that, where only live births are counted, the sementic, perinatal mortality ratio, should be employed. Though a large number of prenatal, intranatal and postnatal factors are known to cause perinatal mortality, the situation in India and other developing countries is more or less monopolized by such causes as low birth-weight, birth trauma, congenital malformations and neonatal infections. The estimated PMR now in India is around 30. Nothing short of concerted efforts for improving the prenatal care with special emphasis on mother's diet, avoidance of infections and other harmful influences, efficient obstetric services and 11efficient neonatal services would lead us to our stated goal of reducing perinatal mortality to the minimum.
One to 4 years mortality rate: It is defined as the mortality per 1,000 of children in 1 to 4 years age group. Mortality in this age group depends on the immediate environment including economic, educational and cultural characteristics of the family and the community, rather than on perinatal hazards and other endogenous factors.
Under-5 mortality rate: It is defined as the number of deaths of children under 5 years of age per 1,000 live births. This is the basic measure of infant and child survival, indicating probability of dying between birth and exactly 5 years of age. The 2006 under-5 mortality rate in India is 76.
Child-survival rate: This is calculated by simply subtracting the under-5 mortality rate from 1,000 and dividing the resultant figure by 10. Child survival rate for India is, therefore, 88.0.
 
Maternal and Child Health Programs
Women of the reproductive age groups (15 to 44 years) and children (male and female below 15 years of age) constitute almost 60 percent of the population. Mothers and children are considered as a special group for the following reasons.
  • By virtue of their numbers, mothers and children and major consumers of health service. They comprise of approximately two-thirds of the population in the developing countries. In India, women in the child-bearing age (15 to less than 45 years) constitute 22.8 percent and children under 15 years of age 37.1 percent of the total population. Thus, together they constitute nearly 60 percent of the total population
  • These groups are subjected to marked physical and physiological stress, which if not cared for, may cause serious deviation from normal health
  • They are exposed to unusual risks of widespread infection, poor nutrition and hazardous delivery, which may cause death or impairment of health. The high occurrence of morbidity among women and children is reflected in the fact that in a seven village study.
The protection of the health of the expectant mother and her children is of prime importance for building of a sound and healthy nation.
Maternal and child health (MCH) refers to promotive, preventive and curative health care activities for mothers and children. The objectives of MCH are:
  • To reduce maternal, infant and childhood mortality and morbidity
  • To promote reproductive health
  • To promote physical and psychological development of children and adolescent
  • The mother and child should be considered and treated as one unit for providing health services because of the following reasons:
    • During antenatal period the fetus is part of the mother. The period of development of the fetus is about 40 weeks. During this period, it obtains all necessary supplies to nutrients and oxygen from the mother's blood
    • The health of the child is intricately linked to the mother's health
    • Certain diseases inflicting the mother during pregnancy can have that deleterious effect on the health of the fetus
    • Even after birth, the child is dependent for its feeding upon the mother, at least in the 1st year of life
    • During the first few years of life, the child usually accompanies the mother, during her visits to the health facilities and there are few occasions when services to the mothers and children and not simultaneously called for
    • The mental and social development of the child is also dependent on the mother. The mother is the earliest teacher of the child. The death of the mother causes a maternal deprivation syndrome in the child.
The policy guidelines for implementation of MCH program are:
  • Effective use should be made of existing resources and infrastructures available in the community
  • The services should be delivered as close to the homes of beneficiaries as possible
  • Services for mothers and children should be delivered, in an integrated manner
  • Child survival programs should serve as a sugar coating for delivery of the family planning programs, which in general are not popular
  • Voluntary agencies working in the area should be involved in providing MCH services.
World Health Organization in 1989 gave call for CSSM program, which was implemented by the Government of India. This program was initiated in 1992. It is yet another exercise of renaming old programs, which have existed for several years and repacking them with a new name. The different components of the CSSM program are: advice on breastfeeding, care of the newborn infant, resuscitation of the neonate, care of low-birthweight infant and also services to pregnant women. The CSSM program with an integrated package of intervention for improving the health status of women and children and reducing the maternal infant and child mortality rates. The services under this program provided to pregnant women, infants and children under 5 years of age include:
 
For Pregnant Women
  • 12Essential care for all
    • Register by 12 to 16 weeks
    • Antenatal check up at least three times
    • Immunization with tetanus toxoid (TT)
    • Give iron folic acid (IFA)-large tablet to all (1 tablet a day for 100 days)
    • Treat those with clinical anemia (2 tablets a day for 100 days)
    • Deworm with mebendazole (during 2nd/3rd trimesters in areas, where prevalence rate of hookworm infestation are high
    • Safe and clean delivery services
    • Prepare the woman for exclusive breastfeeding and timely weaning
    • Postnatal care, including advice and services for limiting and services for limiting and spacing births.
  • Early detection of complications
    • Clinical examination to detect anemia
    • Bleeding indication antepartum hemorrhage (APH) or primary postpartum hemorrhage (PPH)
    • Weight gain of more than 3 kg in a month or systolic blood pressure (BP) of 140 mm Hg or more diastolic BP of 90 mm Hg or more
    • Fever 39°C and above after delivery or after abortion
    • Prolonged or obstructed labor (labor pain for more than 12 hours).
  • Emergency care for those who need it
    1. Early identification of obstetric emergencies
    2. Provide initial management and refer to identified referral units
    3. Use fastest available mode of transport.
  • Women in the reproductive age group
    • Counsellings are:
      • ♦ Optimal timing and spacing of birth
      • ♦ Small family norms
      • ♦ Use and choice of contraceptives
    • Information on availability of
      • ♦ Medical termination of pregnancy (MTP) services
      • ♦ Intrauterine device (IUD) and sterilization services.
The package of services under CSSM Program are:
 
For the Mothers
  • Immunization
  • Prevention and treatment of anemia
  • Antenatal care and early identification of maternal complication
  • Deliveries by trained personnel
  • Promotion of institutional deliveries
  • Management of obstetric emergencies
  • Birth spacing.
 
For Children
  • Essential newborn care
  • Immunizations
  • Appropriate management of diarrhea
  • Appropriate management of acute respiratory infection (ARI)
  • Vitamin A Prophylaxis
  • Treatment of Anemia.
 
Infants
Newborn care
  • Birth weight for all newborns
  • Resuscitation of asphyxiated babies
  • Care of low birth weight babies
  • Prevention of hypothermia
  • Exclusive breastfeeding within 1 hour of delivery
  • Referral of newborns who show signs of illness
  • Advice to mother on essential newborn care, prevention of hypothermia, infections, nutrition (breastfeeding and weaning), immunization, vitamin A prophylaxis and early signs when to seek help.
Immunization
  • Bacille Calmette–Guerin (BCG)—one dose at birth
  • Diptheria, pertussis, tetanus (DPT)—three doses beginning 6 weeks at monthly intervals
  • Polio—‘0’ dose at birth for all institutional deliveries and three doses beginning 6 weeks at monthly interval
  • Measles—one dose at completion of 9 months of age
  • Vitamin A—first dose (100,000 IU) with measles vaccination.
 
Children (1 to 3 years)
Immunization
  • DPT/oral polio vaccine (OPV)—booster dose at 15 to 18 months.
  • Vitamin A—second dose (200,000 IU) at 16 to 18 months along with DPT/OPV booster and third dose to fifth dose (200,000 IU each) at 6 months interval.
 
Children (1 to 6 years)
Prevention of anemia
  • IFA small tablets of child has clinical signs of anemia.
  • Stool examination for hookworm infestations (where facilities are available)
  • Deworm with mebendazole in areas, where prevalence rate of hookworm infestation are high.
Prevention of deaths due to diarrheal diseases
  • Correct care management for all cases of diarrhea.
13Advise mothers
  • To give increased volume of fluids (oral rehydration salts [ORS] or home available fluids [HAF] as soon as diarrhea starts)
  • How to prepare ORS solution
  • Continue feeding the normal diet
  • To recognize signs when to seek help.
Prevention of deaths due to pneumonia
  • Correct case management for all cases of ARI
  • Early initiation of cotrimoxazole to children with signs of pneumonia
  • Referral of children with severe pneumonia or very severe illness.
The rapidly growing population has been a major concern for health planners and administrators in India, since independence. The result was the launching of the National Family Planning Program by the Government of India in 1952, which later became Family Welfare Program. India is the first country to have taken up the family planning program at the national level. Poor health status of women and children in terms of high facilities like hospitals and health centers were established for providing MCH care through antenatal, intranatal and postnatal services.
In addition, a number of special programs and schemes like immunization against vaccine preventable diseases, nutritional interventions like IFA distribution and vitamin A supplementation, diarrheal diseases control program through oral rehydration therapy (ORT), ARI control program, etc. were implemented over the past. In order to ensure maximum benefits from these programs and to provide services in an integrated manner to this vulnerable group, the CSSM program was implemented.
 
REPRODUCTIVE AND CHILD HEALTH PROGRAM
Despite all these efforts, the desired impact on the population growth and health and development of women and children in the country could not be achieved and the need for a new approach to the problem was felt. International conference on population and development (ICPD) held at Cairo in 1994. The nations of the world agreed to give special attention to reproductive health issue. ICPD recommended that new approach needs to be adopted to tackle the problem. Under this approach it was decided that family planning services should be provided as a component of the comprehensive reproductive health care. ICPD defined reproductive health as a state of complete physical, mental and social well-being and not merely the absence of disease or infirmity, in all matters relating to the reproductive system. Reproductive health approach implies that men and women be well informed about and have access to safe and effective contraceptive methods, as well as women can go through pregnancy and child birth safely and that couples are provided with best chance of having a healthy infant.
Following the recommendations of ICPD, being one of the 180 countries, which participate in the conference, the Government of India took the decision to launch a Reproductive and Child Health (RCH) program in the 9th five-year plan. Accordingly to adopt the reproductive health approach to the population issues, India officially launched the RCH program in October 1997. In India, the RCH approach has been defined as “people have the ability to reproduce and regulate their fertility, women are able to go through pregnancy and child birth safely, the outcome of pregnancies is successful in terms of maternal and infant survival and well-being and couples are able to have sexual relation free of pregnancy and of contracting diseases”.
The basic elements or RCH are:
  • Family planning
  • MCH
  • Safe abortion services
  • Effective control of STD and RTI
  • Prevention and management of infertility
  • Prevention, detection cum treatment of reproductive tract malignancies.
The major factors affecting RCH are as follows:
  • Socioeconomic condition
  • Status of women
  • Educational opportunities
  • Family environment
  • Nutrition
  • Gender relationship
  • Traditional and legal structure of society.
An extrinsic factor affecting RCH care service are the following:
  • Adolescent health
  • Maternal mortality
  • Unsafe abortion
  • RTIs
  • STDs
  • AIDS
  • Infertility
  • Cancer
  • Empowerment of women.
 
Package of Services Provided Under the RCH Program
Reproductive and child health approach means that every couple should be able to have children when they want, that the pregnancy is uneventful, that safe delivery services are available, that at the end of pregnancy, the mother and the 14child are safe and contraception by choice are available to prevent pregnancy and contracting diseases.
 
Child Survival and Safe Motherhood
  1. For the mothers
    • Essential care for all
    • Early detection of complications
    • Emergency care for those who need it.
  2. For the children
    • Essential newborn care
    • Exclusive breastfeeding and weaning
    • Immunization
    • Appropriate management of diarrhea
    • Appropriate management of ARI
    • Vitamin ‘A’ prophylaxis
    • Treatment of anemia.
  3. For eligible couples
    • Prevention of pregnancy through contraception services
    • Safe abortion.
  4. Prevention and management of RTI and sexually transmitted infections (STI's).
  5. Adolescent health services, including counselling of family life and reproductive health.
 
RCH Services
Essential care for all.
 
Mothers
  • Register by 12 to 16 weeks
  • Antenatal check-up at least three times during pregnancy (20, 32, 36 weeks). The purpose of antenatal check-up is to monitor progress of the pregnancy and to identify and refer high-risk cases for appropriate treatment at a hospital
  • Tetanus toxoid immunization should be given to all pregnant women as early as possible during pregnancy with two doses at 1-month interval. If already immunized during the previous pregnancy, she should receive one dose of TT
  • Give one tablet of IFA (large) daily for 100 days to all pregnant women
  • Treat those with clinical signs of anemia with two tablets of IFA (large tablets for 100 days)
  • Deworm with mebendazole (during 2nd/3rd trimester) in areas, where hookworm infestation is common
  • Safe and clean delivery services
  • Prepare the woman for exclusive breastfeeding and timely weaning
  • Postnatal care, including advice and services for limiting and spacing births.
Early detection of complications
  • Clinical examination to detect anemia. Anemia is not only a major cause for maternal mortality and morbidity, but is also major contributory factor for birth of a low- birthweight baby
  • If there is bleeding before (APH) and excessive bleeding after delivery (PPH), she should be referred to the hospital by the quickest mode of transport
  • Weight gain of more than 3 kg in a month or systolic bp of 140 mm Hg of more should arouse suspicion of pre-eclampsia. Such cases may also get fits (eclampsia). All these cases are medical emergencies and should be referred to the nearest hospital
  • Fever of 39°C and above after delivery or abortion are normally due to infections and sometimes can be fatal. They would also require treatment at a hospital
  • Prolonged or obstructed labor (labor pain for more than 12 hours) can lead to rupture of uterus. It is, therefore, essential to take them to the nearest hospital, where facilities for cesarean section are available.
Emergency care for those who need it
  • Early identification of obstetric emergencies
  • Provide initial management and refer to identified referral hospitals minimum time should be wasted, as delay can be fatal
  • Use fast available mode of transport. The health workers must know the hospital, where such cases can be treated and properly guide the attendants, so that they can shift the patient by locally available quickest mode of transport by taking shortest route
  • While transporting such cases, the patient should lie on her left side. In case the patient has fits, a roll of clothe should be placed between teeth to avoid tongue bite.
Women in the reproductive age group
  • Counselling on:
    • Importance of care of girl child
    • Optimal timing and spacing of birth
    • Small family norms
    • Use and choice of contraceptives
    • Prevention of RTIs/STDs.
  • Information of availability of:
    • MTP services
    • IUD and sterilization services
  • Provide family planning services
    • Condom distribution
    • Oral contraceptives
    • IUD.
  • Recognition and referral of RTIs/STDs
  • Provision of clean and safe delivery practices at the community level
  • Create awareness in the community on need for five cleans and safe deliveries
  • 15Deliveries by trained personnels
  • Provision of disposable delivery kits (DDKs) to all pregnant women
  • Promotion of institutional deliveries
  • Identification and referral of high-risk cases at the community level trained dais.
 
Infants
Newborn care
  • Take birthweight of all newborns, Normal birthweight is above 2,500 g. Babies whose weight is between 2,000 to 2,500 g would require special care. Such babies are to be covered well with clothes and put close to the mothers, breastfed well and not to be handed by too many people in order to prevent infections. If the birthweight is less than 2,000 g the newborn must be referred to a Medical Officer for further examination and management
  • Resuscitation of asphyxiated babies: The mucus trapped in the mouth should be gently sucked with the help of mucus sucker and give mouth-to-mouth respiration, if necessary
  • Prevention of hypothermia: Newborns are susceptible to catch cold. After birth, the newborn should be wiped dry and covered well with soft clean cotton cloth, which has been washed with soap and dried in sun
  • Exclusive breastfeeding within 1 hour of delivery. It is essential that the newborn is given the first milk, as it contains many essential nutrients and helps in developing immunity against diseases. The infant should be breastfed exclusively and no other fluid need to be given till the age of 4 to 6 months when semisolid food should also be given
  • Referral of newborns who show signs of illness
  • Advise the mother on essential newborn care, prevention of hypothermia and infections, nutrition (breastfeeding and weaning), immunization vitamin A and early signs when to seek help.
Immunization
  • BCG: One dose at birth
  • DPT: Three doses beginning at 6 weeks at monthly interval
  • Polio: Zero dose at birth for all institution deliveries, three doses beginning at 6 weeks at monthly interval
  • Measles: One dose at completion of 9 months of age
  • Vitamin A: First dose (100,000 IU) with measles vaccination.
 
Children
Immunization
  • DPT/OPV booster dose at 16 to 18 months
  • Vitamin A: Second dose (20,00,000 IU) at 16 to 18 months along with DPT/OPV booster and third to fifth doses [2,00,000 IU (International Unit)] each at 6 monthly intervals
  • IFA: Small tablets if child has clinical signs of anemia
  • If suspected treat, end for hookworm infestation.
Prevention of deaths due to diarrheal diseases
  • Correct case management for all cases of diarrheas
  • Advise mother:
    • To give increased volume of fluids (ORS or HAF) as soon as diarrhea starts
    • How to prepare ORS solution
    • Continue feeding the normal diet
    • To recognize signs when to seek help.
Prevention of deaths due to pneumonia
  • Correct case management for all cases of ari
  • Early initiation of cotrimoxazole to children with signs of pneumonia
  • Referral of children with severe pneumonia or very severe illness.
 
Reproductive Tract Infection/Sexually Transmitted Infection
Reproductive tract infection include a variety of bacterial, viral and protozoal infections of the lower and upper reproductive tract of both sexes. RTIs pose a threat to women's lives and well-being throughout the world. A high incidence of infertility, tubal pregnancy and poor reproductive outcome is an indirect reflection of high prevalence of RTIs/STIs in India.
Vaginal discharge is amongst the first 25 percent reasons to consult a doctor. 40 percent gynecological outpatient department (OPD) attendance is because of RTIs and 16 percent of gynecological admissions are due to pelvic inflammatory disease (PID).
 
Causes of Reproductive Tract Infection
Infections caused by overgrowth of organism normally found in the vaginal tract is known as endogenous infection. These infections are associated with inadequate personal, sexual and menstrual hygiene practices.
Sexually transmitted diseases are a specific group of communicable diseases that are transmitted through sexual contact.
Infections, which are due to inadequate medical procedures such as unsafe abortion, unsafe delivery or unhygienic IUD insertion are known as, iatrogenic infections.
 
Signs and Symptoms Associated with RTIs
  • In Women
    • Increased discharge from the vagina that looks and smells different from (change in amount, color and smell)
    • Pain or burning, while urinating
    • Painful or painless sores, blisters or warts on or near the genitals
    • Pain on one or both sides of lower abdomen
    • 16Irregular menstrual periods
    • Pain or bleeding during intercourse
    • Rash on the entire body or just on the palms and soles
    • Swelling on one or both sides of the groins.
  • In Men
    Symptoms usually appear within 2 to 3 days or a couple of weeks or even months after having sex with an infected partner are:
    • Pus or discharge from the penis
    • Burning of pain, while urinating
    • Painful or painless stores, blisters or warts on or near the penis
    • Pain in one or both the testicles.
 
Prevention of RTIs and STI
  • Identify the women with RTI/STI
  • Refer the women to medical officer of primary health care (PHC) promptly for examination and treatment
  • Identify sexual partners and ensure their treatment
  • Advice correct use of condom, during every sexual act
  • Provide counselling/health education to individuals, family and community
  • Observe infection prevention measures amongst the health personnel.
A comprehensive RTI/STI control program requires three levels of action:
  • Primary prevention
  • Secondary prevention
  • Tertiary prevention.
Primary prevention: Avoiding acquisition of infection through infected sexual partners. Strategy of primary prevention, includes education and counseling about safe sex practices, sexual hygiene and promotion of condom use. Use of condom prevents transmission of RTIs/STIs.
Secondary prevention: It aims at early detection of signs and symptoms and early referral of RTIs/STIs, so that spread of infection, to others is decreased. In the peripheral health care setting, currently treatment is based on syndromic management. Counseling and education to motivate health seeking behavior in community by reducing the number of sexual partners (ideally sticking to single faithful sexual partner). Use of most appropriate antibiotics, practicing proper asepsis during reproductive interventions and education of sex partners.
Tertiary prevention: It includes controlling complication of RTI. Strategies for tertiary prevention includes active screening for presence of infection in high-risk group and appropriate management.
  • Clinical management of septic abortion
  • Transport for ectopic pregnancy
  • Management for infertility
  • Cervical cancer screening.
Under the RCH programs RTI/STI clinical are being set up in the first referral units (FRU's) and PHCs phases wise. The auxiliary nurse-midwives (ANMs)/lady health visitors (LHVs) will be trained to provide RTI/STI and PHCs phase wise. The ANMs/LHVs will be trained to provide RTI/STI services to the community. They will identify the RTI/STI cases and refer them to the PHCs and to the nearest RTI/STI clinics. At the district level sudden infant death (SID) clinics will now treat RTI patient and are being assisted by National AIDS Control Program (NACP). To make them client friendly and easily accessible to women, district hospitals are asked to provide RTI services in the gynecology ward/postpartum center.
 
CHILD WELFARE SERVICES IN INDIA
Child welfare covers the entire spectrum needs of children, who by reason of handicap—social, economic, physical or mental—are unable to avail of services provided by the community. Child welfare programs that seek to provide supportive services to the families of those children, because one of the important responsibilities of the society and state, is to assist the family in its natural obligations for the welfare of the children. In India, we have a number of child welfare agencies, the important ones are:
  • Indian Council for Child Welfare
  • Central Social Welfare Board
  • Kasturba Gandhi Memorial Trust
  • Indian Red Cross Society.
These agencies have got branches all over the country and they get financial aid from the government to organize child welfare services in the country by arranging day-care services, holiday homes and recreation facilities for children.
In addition to national agencies, some international agencies also are interested in child welfare services, which includes:
  • UNICEF
  • WHO
  • International Union of Child Welfare
  • Child and Adolescent Resource Education (CARE)
  • Food and Agriculture Organization (FAO)
  • United Nations Organization (UNO)
The Child Development Project Officer (CDPO) supervises the work of Mukhya Sevikas and is incharge of each ICDS project. He is, preferably a graduate in child development, social work, home science, nutrition or any allied field and has had 2 months special training.
17The ICDS scheme is under the administrative control of the Social Welfare Ministry of the Government of India. At the State level too, social welfare is the administrative ministry in vast majority of the States. In rural projects, the services are strengthened by the primary health centers, whereas in the urban ones, medical colleges make outstanding contributions. Training consultants (drawn from community medicine or pediatrics) provide services related to training, survey and research.
 
Community Participation
All attempts must be made to explain different components of the program to the community, so that people feel involved in it. Community needs to be involved through local health committees in the preparation of nutritious food mix for supplementary nutrition, using local foods, immunization, vitamin A, iron and folic acid supplementation, etc. Mahila Mandals can play valuable role in ICDS activities.
 
NUTRITION PROGRAMS
The Government of India have initiated several large scale supplementary feeding programs and programs aimed at overcoming specific deficiency diseases through various ministries to combat malnutrition, including Ministry of Health and Family welfare, Ministry of Social Welfare and Ministry of Education.
The major factors leading to malnutrition in India, include inadequate intake of calories and proteins, deficiency of certain micronutrients (like iron, vitamin A, calcium or iodine). Maldistribution of essential food commodities, low purchasing power, lack of knowledge about balanced nutrition and limited access to health care facilities. The vicious cycle of poverty malnutrition and ill-health has to be combated through the integrated efforts of socioeconomic development, better nutrition is widely prevalent, especially amongst those who live below poverty line. The worst hit are pregnant and lactating mothers and children below 6 years of age, because of additional requirements and their vulnerable condition. They are more prone to infection and malnutrition.
Dietary survey in the low socioeconomic groups have shown a dietary deficit of 500 to 600 calories in women and 1,000 to 1,100 calories in pregnant and lactating mothers. This maternal malnutrition leads to ‘Low-birthweight’ babies. The average birthweight of newborn in the lower socio-economic groups is 2.7 kg as compared with 3.1 kg in higher socioeconomic groups. Low-birthweight babies have a worse mortality experience, being more vulnerable to infection. Malnutrition directly or indirectly responsible for over 50 percent of deaths in children below 6 years of age. Over 1 million children die of severe protein calorie malnutrition every year. And 50 percent pregnant women in the third trimester have a hemoglobin level of less than 10 grams percent anemia in pregnancy is directly responsible for 20 percent of all maternal deaths and indirectly for 20 percent of all maternal deaths and indirectly for a much larger proportion. Over 60 percent of children under 6 years of age, suffer from some form of nutritional anemia and protein-energy malnutrition (PEM). Vitamin A deficiency is responsible for at least 25,000 children becoming blind every year. About 40 million people are estimated to be affected by goiter in India.
In view of the high prevalence of malnutrition in India, the Government has launched several nutrition programs at the national level. The following are the major nutrition programs that are being implemented in India.
  1. ICDS scheme
  2. National Nutritional Anemia Prophylaxis Program (NNAPP)
  3. National Goiter Control Program (NGCP)
  4. National Program for Prevention of Nutritional Blindness due to Vitamin A Deficiency
  5. Mid-day Meal Program
  6. Special Nutrition Program
  7. Applied Nutrition Program (ANP)
  8. Chief Minister's Noon Meal Program (Tamil Nadu).
 
Integrated Child Development Services (ICDS) Scheme
The ICDS scheme has already explained in earlier. It is more than a mere nutrition program and aims at total development of the child. ICDS consists of growth monitoring, supple-mentary nutrition is given for 300 days a year by on-the-spot feeding as far as possible. All beneficiaries receive daily ration of 300 kcal and 8 to 10 grams protein. Severally malnourished children and pregnant and lactating mothers receive daily supplementary nutrition providing 60 kcal. and 18 to 20 grams of protein. In this program, vitamin ‘A’ prophylaxis and IFA distributions are included.
The major beneficiaries of ICDS (Table 1.1) are children under 6 years of age and pregnant and lactating mothers. Besides, women in the age group 15 to 44 years are also included. Thus, beneficiaries constitute over 40 percent of the total population. The scheme is jointly operated by the Ministry of Health and Family Welfare and Ministry of Women and Child Development.
The strategy adopted in ICDS is one of the simultaneous delivery of early childhood services. While the health component forms a major component, ICDS is much more than a mere health program for delivery of social service 18input for development. The administrative unit of an ICDS project is the community development block in rural area, the tribal development block in tribal areas and a group of slums in urban areas. The focal point for the delivery of integrated early childhood services under the ICDS scheme is the trained local women known as Anganwadi Worker (AWW). Other functionaries in ICDS scheme are CDPO, who is In-Charge Officer, Supervisors (Mukhya Sevikas) for 100 AWW.
lCDS scheme is designed both as a preventive and development effort. The objectives of the ICDS scheme are:
  • To improve the nutritional and health status of children in the age group of 0 to 6 years
  • To lay the foundations for proper psychological, physical and social development of the child
  • To reduce mortality and morbidity, malnutrition and school dropout
  • To achieve an effective coordination of policy and implementation among the various departments working for the promotion of child development
  • To enhance the capability of the mother and nutritional needs of the child through proper nutrition and health education.
To achieve the above objectives the ICDS aims as providing the following package of services (Table 1.1).
ICDS scheme ought to be viewed as a vital drive against poverty and as an instrument to improve the health, nutritional and educational status of the underprivileged children and mothers as a part of India's 20-point development plan.
Table 1.1   Services available to different categories of beneficiaries scheme (ICDS)
Beneficiary
Services
Children under-1 year
  • Supplementary nutrition
  • Immunization
  • Health check-up
  • Referral services
Children of 1 to 3 year age group
  • Supplementary nutrition
  • Immunization
  • Health check-up
  • Referral services
Children of 3 to 6 year age group
  • Supplementary nutrition
  • Immunization
  • Health check-up
  • Referral services
Expectant and nursing mothers
  • Non-formal preschool education
  • Health check-up
  • Immunization against tetanus of expectant mothers
  • Supplementary nutrition
  • Nutrition and health education
Other women of 15 to 14 year age group
  • Nutrition and health education
What is remarkable is that, according to conservative estimates, it will cost less than even 1 percent of the gross domestic product of the country.
The services are delivered at a community center, the Anganwadi (meaning a courtyard). Anganwadi worker is the backbone of the center. She comes from a local community and has had 4 months training in fundamentals of child development, nutrition, immunization, personal hygiene, environmental sanitation, antenatal care, breastfeeding, identification and immediate management of at-risk children, treatment of common day-to-day illnesses, preschool education and functional literacy and simple recordkeeping. In each urban ICDS project, Anganwadi worker must at least be a matriculate, but that is not necessary for rural and tribal projects.
 
Special Nutrition Program (SNP)
The Special Nutrition Program (SNP) was launched in 1970, as a crash program to provide supplementary nutrition to children below 6 years of age and pregnant and lactating mothers. The socially and economically handicapped are to be reached through this program, as well as those in slums, drought prone and flood-affected areas. It is now envisaged that the SNP should include some of the components of the ICDS, in order to render it more effective, properly selected target groups of mothers and children are to be supported with basic health inputs, including nutrition and health education.
The objectives of the program is to improve the nutritional status of pregnant and lactating mothers and children below 6 years of age in the weakest sections and most-vulnerable areas. The objectives are now to include a reduction in mortality and morbidity in children below 6 years, enhance the capacity of mothers to look after the daily health and nutritional needs of children and to strengthen the supportive services. The main activities of the program are:
  • To provide supplementary nutrition
  • To provide health services including supply of vitamin A solution and iron and folic acid tablets (since 1976).
This program is for the nutritional benefit of children below 6 years of age, pregnant and nursing mothers and is in operation in urban slums, tribal areas and backward rural areas. The supplementary good supplies about 30 kcal and 10 to 12 gram of protein child per day. The beneficiary mothers receive daily 500 kcal and 25 grams of proteins. This supplement is provided to them for about 300 days in a year. This program is gradually merged into ICDS.
 
National Nutritional Anemia Prophylaxis Program
19Nutritional anemia is one of the important health problems, affecting women and children in India. An ICMR study (1965) shows that about 50 percent of children under-5 years and 50 percent pregnant and lactating mothers have hemoglobin (Hb) level less than 10.5 gram percent. To start with, the NNAPP had no set goals. Under this program, anemic mothers and children are given, IFA tablets. The tablets for mothers contain 60 mg elemental iron and 500 microgram folic acid and those for children contain 20 mg iron and 100 microgram folic acid. Tablets are distributed to mothers and children if their hemoglobin is below 10 gram percent and 8 gram percent respectively. For young children who cannot swallow, liquid preparations containing the same amount IFA (2 mL at a time) is given. The good progress have been achieved through this program. The major objective of the program is to prevent overt anemia. The specific objectives as identified from general description of the program are as follows:
  • To assess the baseline prevalence of nutritional anemia in mothers and young children through estimation of Hb levels
  • To put the mothers and children with low Hb levels (less than 10 g% and less than 8 g%) on anti-anemic treatment
  • To put the mothers with Hb levels more than 10 g/dL and children with more than 8 g/dL on the prophylaxis program
  • To monitor continuously, the quality of the tablets, distributions and consumption and to assess periodically the Hb levels of the beneficiaries
  • To negative mothers, through relevant education, to consume the IFA tablets and to give the same to their children.
 
National Goiter Control Program
The Government of India realizing the magnitude of endemic goiter launched the NGCP in 1962. It aimed at replacement of ordinary salt by iodized salt, particularly in goiter endemic regions. Surveys indicated that the problem of the goiter and iodine deficiency disorders was more widespread than it was thought earlier, with nearly 145 million people estimated to be living in known endemic areas of the country. As a result, the program started in 1986 with objective to replace the entire edible salt by iodide salt in a phased manner by 1992. The objectives of NGCP are:
  • Initial survey to assess the magnitude of the iodine deficiency disorders
  • Supply of iodized salt in place of common salt to the entire country by 1992
  • Repeat surveys to assess the important of iodized salt after 5 years.
Accordingly, the program has been implemented and shown some progress. But reveals strengthening of NGCP. Areas requiring strengthening of the NGCP related to:
  • Irregular distribution of iodized salt for varying periods
  • Lack of supportive supervision for the quality of iodized salt distributed
  • Failure of lifting of the allotted quotas of iodized salt by wholesale agents for further distribution to retailers
  • Poor interpersonal relationship between salt dealers and food inspectors, the implementation of Prevention of Food Adulteration (PFA) Act
  • Coordination between department of food and civil supply, health and wholesale dealers.
 
National Program for Prophylaxis Against Blindness due to Vitamin ‘A’ Deficiency
The national program for prophylaxis against blindness due to vitamin ‘A’ deficiency was launched, in 1970, under Ministry of Health as a part of MCH program. Studies have been shown that in the southern and eastern parts of the country, about 30% to 50% preschool children have eye problems as a result of vitamin ‘A’ deficiency. It is estimated that 2 percent of the total blindness in India is caused by vitamin’ A’ deficiencies.
The specific objective of the program in reduction of diseases and prevention of blindness due to vitamin ‘A’ deficiency. An evaluation of the program has shown that in areas, where it has been implemented well, there was significant reduction in the prevalence of signs of vitamin ‘A’ deficiency. The reason for coverage have been inadequate supplies of vitamin ‘A’ and adoption of clinic approach, instead of house to house visit for the distribution. As a part of RCH program (earlier CSSM), attention now focussed upon children upto 3 years of age.
 
Balwadi Nutrition Program
The Balwadi Nutrition Program was started in 1970–71, with the preschool child, as it is operated through Balwadis and day-care centers and is under the charge of the social welfare department.
The objective of the program is to supply one-fourth of the calorie requirements and half of the protein requirements of the preschool child as a measure to improve the nutritional status. It is to be a supplement to what the child receives at home. As far as possible, locally available food stuff is to be utilized. Children belonging to the lower socioeconomic group would be selected. Community involvement would be encouraged.
20The nutrition supplement providing 300 cal and 10 grams of protein per child per day for 270 days in a year is provided in Balwadis or day-care centers, where some non-formal education of the preschool child is given. It is envisaged that package including basis health components are to be included as in the ICDS.
This program is directed by the Ministry of Social Welfare through several voluntary organization. Balwadi is managed by Balasevikas assisted by helper, coordination committees at the center, state, district, block along with the community, are to ensure regular supply of resources and effective management.
 
Mid-day Meal Program
The Mid-day Meal Program (MDMP) started in India in 1925 in Madras, as part of the peoples movement. It picked up momentum and the governments on a nationwide basis, stepped it up in 1962-63. CARE started assisting the program in 1961. The Mid-day Meal Program gives supplementary food to children aged 6 to 11 years in primary schools. Food is given for 200 days in a year and ration of 38 lbs per year per child.
The objectives of the program is to provide food to meet the gap in nutritional requirements, particularly in poor children. This would help the children, not only improving the nutritional status, but also improve their performance at school. It would indirectly act as an incentive for sending children to school.
In this program, each primary school child is given food for 200 days. This is to be an addition to what the home provides. This program is coordinated and implemented by the Ministry of Education.
As stated earlier, the major objectives of the program is to attract more children for admission to schools and retain them, so that literacy improvement of children could be brought about. In formulating mid-day meals for school children, the following broad principles should be kept in mind.
  • The meal should be a supplement and not a substitute to the home diet
  • The meal should supply at least one-third of the total energy requirement and half of the protein need
  • The cost of the meal should be reasonably low
  • The meal should be such that it can be prepared easily in schools, no complicated cooking process should be involved
  • As far as possible, locally available foods should be used, this will reduce the cost of the meal
  • The menu should be frequently changed to avoid monotony.
A model menu for a mid-day school meal will be:
Food stuff
gram/day/child
Cereals and millets
75
Pulses
30
Oils and fats
8
Leafy vegetables
30
Non-leafy vegetables
30
This Mid-day Meal Program become the part of the Minimum Need Program in the fifth five year plan.
The almost similar program called “Akshara Dasoha” (Bisi-oota) program started in Karnataka in 2003.
 
Applied Nutrition Program
Improvement in nutritional status depends largely upon awareness and knowledge, as well as availability of food. The rest, while expanded program of nutrition started in India in 1960. It was started first in Orissa and Andhrapradesh and extended in 1960 to Tamil Nadu and in 1962 to Uttar Pradesh. In 1963, the ANP was extended to the whole country through the Government of India, along with aid from UNICEF with the active participation of the states.
The program was launched in 1963 to combat malnutrition in vulnerable groups, particularly mothers and children in rural area. The program was basically and education oriented program, operational at the village and family level.
The main objectives of the program are:
  • To make people conscious of their nutritional needs
  • To increase production of nutritious foods and their consumptions
  • To provide supplementary nutrition to vulnerable groups through locally produced foods.
    The main components of the ANP are:
  • Production of protective foods
  • Training of functionaries involved in the production of these foods
  • Nutrition education and demonstration (demonstration of improved technique of cooking and feeding were also used).
The program is coordinated by the Ministry of Rural Reconstruction.
At the state level, the Panchayat Raj and Community Development is generally in charge of the program. In the field, block development officer is in charge of the program.
The activities of the applied nutrition program will include:
  • Kitchen gardens, school gardens and community gardens are set up to promote the concept of a balanced diet, as well as to increase production
  • 21Fishery units and poultry units are set up. This gives employment, added income and more production of food (poultry farming, Bee keeping, etc.)
  • Providing better seeds, as well as well-bred cattle ware provided
  • Supplementary feeding, thorough local food production was given to vulnerable pregnant and lactating mother and children
  • Panchayats, Yuvak and Mahila mandals were to be involved to promote community participation
  • Training for horticulture and pisciculture were given
  • Normal-formal preschool education.
Evaluation studies showed that ANP has not generated the desired awareness for productions and consumption of protective foods. The community kitchen gardens and school gardens could not function properly due to lack of suitable land, irrigational facilities and low financial investments. The scheme of setting up to poultry units and place cultures also did not make much headway. The adequate infrastructure for co-ordination, implementation and monitoring was not developed at the field and district level. Therefore, the programs lacked effective supervision and has become defunct.
 
Integrated Management of Neonatal and Childhood Illness Strategy
The Integrated Management of Neonatal and Childhood Illness (IMNCI), WHO/UNICEF designed new strategy is inspired by the common observation that in developing countries, illness usually strikes as a group rather than as a single disease, say diarrhea or respiratory infection. In addition, anemia, malnutrition and poor immunization coverage often go unaddressed, although these are known to commonly accompany these illnesses. Here, therefore, the focus in an integrated manner, is on main causes of morbidity and mortality, as also the overall health of the child. The remarkable components of the strategy are:
  • Improvement of the case management skills of health providers through provisions of locally adapted guidelines and training activities to promote their use.
  • Guidelines on referral criteria are quite an important component of the algorithm.
  • Provision of essential drug supplies required for effective case management of childhood illness.
  • Optimization of family and community practices in relation to child health, particularly care-seeking behavior.
In India, IMNCI has been expanded to include neonatal care. Hence, it is rechristened Integrate Management of Neonatal and Childhood Illness (IMNCI) and made central pillar of the child health strategy under RCH-II/National Rural Health Mission (NRHM).
Three major components of IMNCI are:
  1. Improvement in case-management skills of health staff through appropriate guidelines.
  2. Improvement in the overall health system
  3. Improvement in family and community healthcare practices.
 
Principles of IMNCI Guidelines
  1. All sick young infants upto 2 months of age, must be assessed of possible bacterial infection/jaundice and diarrhea.
  2. All sick children aged 2 months upto 5 years, must be examined for ‘general danger signs’ and then for cough or difficult breathing, diarrhea, fever or ear problems.
  3. All sick young infants and children aged 2 months upto 5 years, must also routinely be assessed for nutritional and immunization status, feeding problems and other potential problems.
  4. Only a limited number of carefully-selected clinical signs of high sensitivity and specificity are used.
  5. Based on the signs, the child is assigned to color-coded classification: ‘pink’ suggests hospital referral/hospitalization, ‘yellow’ indicates specific treatment and ‘green’ calls for home treatment.
  6. Guidelines address most, but not all health problems.
  7. Management procedures use a limited number of essential drugs and encourages active participation of caretakers who need counseling about home care, including feeding, fluids and follow-up visit(s).
 
Steps of Management
Step 1: Check-up to identify the illness.
Step 2: Classification of illness according to color-coded charts.
Step 3: Advise retreatment/referral/home management (including counseling).
Step 4: Follow-up.
(For more details of IMNCI please refer Chapter 7, Page No. 220)
 
PHILOSOPHY OF CHILD HEALTH NURSING
Children need accessible, continuous, comprehensive, coordinated, family-centered and compassionate care that focuses on their changing physical and emotional needs. Pediatric nurses provide this care by focusing on the family, providing atraumatic therapeutic care and using evidence-based 22practice. These three concepts represent an overarching philosophy of pediatric nursing care and are integrated throughout the text.
 
Family-centered Care
Parents or guardians play a critical role in the health and well-being of children. Providing care through a family-centered approach leads not only to better outcomes, but also to better consumer satisfaction. The family is the child's primary source of support and strength. The knowledge that the family has about a child's health or illness is vital. Family-centered care involves families and caregivers working in a collaborative partnership to determine goals and plans for health care. It works well in all arenas of health care; from preventive care of the healthy child to long-term care of the chronically or terminally ill child. Family-centered care enhances parent's and caregiver's confidence in their own skills and also, prepares children and young adults for assuming responsibility for their own health care needs. Key elements of family-centered care include demonstrating interpersonal sensitivity, providing general health information, communicating specific health information and treating people with respect. Family-centered care focuses on several core principles:
  • Respect for the child and family
  • Recognition of the effects of cultural, racial, ethnic and socioeconomic diversity on the family's health care experience
  • Identification of and expansion of the family's strengths
  • Support of the family's choices related to the child's health care
  • Maintenance of flexibility
  • Provision of honest, unbiased information in an affirming and useful approach
  • Assistance with the emotional and other support the child and family require
  • Collaboration with families
  • Empowerment of families.
When children's health care is provided through a family-centered approach, many positive outcomes are possible. Anxiety is decreased. Children are calmer and pain management is enhanced. Recovery times are shortened. Familie's confidence and problem-solving skills are improved. Communication between the health care team and the family is also improved, leading to greater satisfaction for both health care providers and health care consumers (families). Vigilant parents are committed to their child's care. They demonstrate resilience in their ability to make it through the emotional upheaval associated with an illness. They may experience changes in their other relationships, as well as in the relationships they have with health care providers. Research has shown that families desire and appreciate nurse's sensitivity to the inconveniences that their child's illness may impose upon the family. Families want to have their emotional and spiritual needs addressed, their concerns attended to and their accommodations improved (when the child is hospitalized). They want to be included and valued in the health care decision-making process and to establish rapport with the nurses caring for their child. Practicing true family-centered care may empower the family, strengthen family resources and help the child to feel more secure throughout the process.
 
Atraumatic Care
Children may undergo a wide range of interventions, many of which can be traumatic, stressful and painful. The various settings in which the child receives care can be scary and overwhelming to the child and family and interacting with various health care personnel in various settings can cause anxiety. Thus, another major component of the pediatric nursing philosophy is providing atraumatic care. This is a philosophy of providing therapeutic care through interventions that minimize physical and psychological distress for children and their families. Pediatric nurses must be vigilant for any situation that may cause distress and must be able to identify potential stressors. They take steps to minimize separation of the child from the family and the nursing care they provide decreases the child's exposure to stressful situations and prevents or minimizes pain and bodily injury.
 
Case Management Care
Modern pediatric health care focuses on an interdisciplinary plan of care designed to meet the child's physical, developmental, educational, spiritual and psychosocial needs. Nurses coordinate the implementation of this interdisciplinary plan in a collaborative manner to ensure continuity of care that is cost-effective, quality-oriented and outcome-focused. This type of care is termed case management. When the nurse functions as a case manager, patient and family satisfaction is increased, fragmentation of care is decreased and outcome measurement for a homogeneous group of patients is possible. Case management uses a system of plans, often referred to as critical paths that are derived from standards of care with a multidisciplinary approach that produces clinical practice guidelines. Implementing this philosophy, leads to outcomes that are expected as a result of delivery of that care and may lead to future payment tied to the practice guidelines. Clinical practice guidelines are rooted in evidence-based practice.
Evidence-based practice involves the use of research findings in establishing a plan of care and implementing that 23care. Evidence-based practice is a problem-solving approach to making nursing clinical decisions. This concept of nursing practice includes the use of the best current evidence in making decisions about the care of children and their families. Evidence-based practice may lead to a decrease in variations in care, while at the same time increasing quality.
 
GOALS OF CHILD HEALTH NURSING
 
Health Promotion and Illness Prevention
The goals of the nurse in health promotion are to help families and their children strive for a higher level of wellness and to prevent illness, whenever possible. Every nurse involved with child care must practice preventive health. Regardless of the identified problem, the role of the nurse is to plan care that fosters every aspect of growth and development. Based on a thorough assessment process, problems related to nutrition, immunization, safety, dental care, development, socialization, discipline or schooling often become obvious. Once the problem is identified, the nurse acts on to intervene directly or to refer the family to other health care provider or agencies.
The best approach to prevention of illness is education and anticipatory guidance. An appreciation of the hazards or conflicts of each developmental period enables the nurse to guide parents regarding child rearing practices aimed at preventing potential problems. For example, preventing injuries of children by teaching to family. Besides preventing physical disease or injury, the nurses role is also to promote mental health. For example, it is not sufficient to administer immunization without regard to psychologic trauma associated with the procedure. Optimum health involves the practice of good medicine with a humane approach to health care; the nurse is often the one professional capable of ensuring ‘humanity.’ The nurse is concerned not only with individual families, but also with high-risk groups of children. The nurse can fulfill these goals through individual and/or group education of parents, children, school teachers and other groups, whose concern is for the health of the youngest segment of our population.
 
Health Restoration
The most basic of all nursing roles is the restoration of health through care giving activities. Health restoration refers to the health care of ill children or of those, whose conditions deviate from established norms or from their accustomed level of functioning. The illness may be acute and short-term or chronic and long-term in nature. The role of the nurse varies with the type and degree of illness, from assisting the child and parents with care to compensating totally for their lack of ability to provide care. Now, the number of clients demand health education and requiring supportive health care measures. This has increased the demand for nursing services and has augmented the nurses role in the health care system. This is because, nurses are intimately involved with meeting the physical and emotional needs of children including feeding, bathing, toileting, dressing, security and socialization. Although they are responsible for instituting doctors orders, they are also held singularly accountable for their own actions, judgements, regardless of written orders. A significant aspect of restoration of health is continual assessment and evaluation of physical status. The nurse must be aware of normal finding in order to intelligently identify and document deviations. In addition, pediatric nurse never loses sight of the emotional and developmental needs of the individual child, which can significantly influence the course of the disease process.
To achieve the above goals, the nurses must understand the needs of the child's, derived from the Maslow's hierarchy of needs as given below (Fig. 1.1).
Each adult and child have basic needs, physical, social, emotional motivating force behind human behavior. Abraham Maslow (1954) identified a hierarchy or pyramid of these needs, the physiologic or primary, are at the base and the non-physiologic or secondary, needs are higher towards the apex of the pyramid (Fig. 1.1). According to Maslow, these basic human needs are organized into a hierarchy of prepotency, meaning that higher needs emerge as those lower in the hierarchy are satisfactorily gratified. The ascending order of these needs are:
 
Physiological Needs
Physiological needs for survival and stimulation includes water, air, food, warmth, elimination, rest, sex, activity and the avoidance of pain. These needs are predominant in the motivation of human behavior. The satisfaction of these needs maintains homeostasis or the constance of the internal environment of the body. For example, the 2 year-old child who is starving will seek food before reaching out to play with an offered toy.
 
Safety and Security Needs
Safety and security needs include safety, protection and security. If the physiologic needs are satisfied, the parents caring for the child will then be concerned about safety, protection and security. For example, the toddler who has learned to explore the contents of the cabinet/shelf under the kitchen sink, needs protection from poisons that may be improperly stored there.
24
zoom view
Figure 1.1: Maslow's hierarchy of needs
 
Needs for Love and Belonging
Needs for love and belonging includes affection, closeness and intimate with seek affection, closeness from family and friends. When the child hospitalized, the nurse encourages parents to visit and if possible participate in the child's care.
 
Needs for Recognition and Esteem
Needs for recognition and esteem from others and value and respect of oneself (self-esteem). The child needs to be recognized and esteemed as an individual from birth and to be helped to develop self-esteem during the period of growth. The nurse helps in this process by recognizing and respecting the child's worth and by being attentive to individualized needs that arise.
 
Need for Creativity and Self-actualization
Need for creativity and self-actualization in the making ultimate use of individual abilities. One physiologic needs have been met and the child is feeling secure, loved and esteemed, needs for self-actualization emerge. For example, when the school child is hospitalized, age-appropriate activities are provided, such as materials for creating new objects.
 
Cognitive Needs
Cognitive needs for knowledge and comprehension is to seek knowledge and discovery and understanding of new ideas. Along with the needs for creativity and self-actualization goes the need for learning and understanding. When school-age children are hospitalized for a prolonged period not only creative activities, but also school work is provided to fulfill this need. In general, children also are interested in learning about illnesses that affect them. They are thwarted, if the explanations given are too brief or vague.
 
Aesthetic Needs
Aesthetic needs, i.e. desire for beauty in its various, forms individuals vary in their development of aesthetic task. For instance, when adolescent wants to hang brightly-colored posters in their rooms and the parents do not want the decor of the room; disturbed, conflict may occur.
Although all these needs are important, it is essential that the nurse understands that the total fulfilment is impossible, whether the child is well or ill. The nurse needs to appreciate the fact that problems preventing the fulfilment of needs may arise, problem which can be neither solved nor eliminated. It then becomes the responsibility of the nurse to help the parents and child adjust to the situation in the best way possible.
 
ROLE OF PEDIATRIC NURSE
The role of the nurse has evolved into that of caregiver, patient advocate, counselor, teacher, collaborator, coordinator, change agent and consultant. The role of the pediatric nurse is constantly changing. These changes are the result of evolving 25concepts of wellness and illness. Scientific and technologic discoveries in the field of health and medical care, the rise of consumerism, the impact of the woman movement and the increasing role of government in the care of children. Changes have also occurred within the profession of nursing.
Previously, the emphasis in pediatric nursing was on the care of the ill child as an individual by a nurse in the hospital. Today, the emphasis has broadened to include the prevention of illness and accidents and the holistic health and nursing care of children within that family, consultation. Also, because of growth and maturation in the nursing profession, the nurse who cares for children may become an independent practitioner who can fulfill an autonomous position, as a member of an interdisciplinary health team. Nurses are being involved in these new and expanding roles, exposed to more stress. To scope with this stress, nurses must be adaptable in their approach to problem areas. To adapt successfully, nurses learn to identify the events that produce the stress, the lower physiologic responses to stress can be reduced. These interventions are the same ones that nurses help parents and children use, when they are facing problems.
Now, pediatric nurses are involved in every aspect of a child's and family's growth and development (Fig. 1.2). Nursing functions vary according to the regional job structures, individual education and experience and personal career goals. Just as clients (children and their families) present a vast and unique background, so it is that each nurse brings to the clients an individual set of variables that affect their relationship. No matter pediatric nurses practice, their primary concern is the welfare of the child and family.
 
Good Communicator
The establishment of therapeutic relationship is the essential foundation for providing quality nursing care. Pediatric nurses need to be meaningfully related to children and families and yet, separate enough to distinguish their own feelings and needs. For establishing therapeutic relationship, nurses must first have to communicate in an effective way with the parents, especially mother. Communication with the parents should be regarded as a process, whose purposes are to obtain and transmit information to provide an opportunity for parents to ventilate their feelings and relieve tension and to motivate them in the direction of understanding and resolving their own problem. To assure effective communication with either parent or children, the nurse must have respect for them as human beings and take into account their needs, problems, fears, customs and cultural background. Any interview depends primarily on the nurse's ability to establish and maintain a sound interpersonal relationship with the parent.
The establishment of interpersonal relationship and its attainment is based mainly on the nurse's warmth, sensitivity, objectivity and understanding. But speech does not transmit depth of interest and feeling the nurses physical appearance and movements such as the neatness and appropriateness of the uniform or clothing, facial expression, leaning forward to show interest, looking directly at the parent to show concern and the movement of the hands, are vitally important in furthering a good interviewing relationship. In addition, nurses need to be aware of certain principles in establishing relations with the parents and child as given below:
  • Nurses begin to build a working relationship with the parents and child from the first contact with them, whether in their home, in the hospital or in the community
  • Nurses understand that all behavior is meaningful, although the mean may not always be too clear
  • Nurses totally accept the parents and their child exactly as they are
  • Nurses have empathy for parents and children
  • Nurses are willing to acknowledge the parents, rights to their own decision, concerning their children
  • Nurses permit both parents and child to express negative emotions
    zoom view
    Figure 1.2: General role of pediatric nurse
  • 26Nurses ask questions limited to a single idea or reference. To long and/or complex questions should not be asked to prevent confusion
  • Nurses speak in language understandable to the parents
  • Nurses based on their assessment, should communicate with the child and family on their level of cognitive ability
  • Nurses and the physician, as well as other members of the health and nursing team, help the parents and child feel that there is unity and strength in their group efforts.
In a therapeutic relationship, caring, well-defined boundaries separate the nurses from the child and family. These boundaries are positive and professional and promote the family's control over the child's health care. Therefore, effective family advocacy demands that these boundaries be established. Both the nurse and the parents are empowered and open communication is maintained. In a non-therapeutic relationship, these boundaries are blurred and many of the nurses actions serve personal needs, such as need to feel wanted and involved rather than the family's need. Exploring whether relationship with client's are therapeutic or non-therapeutic, can help nurses to identify problem areas early in their interactions with children and parents.
 
Child Advocate
Although nurses are responsible to themselves, the profession and institution of employment, their primary responsibility is to the consumer of nursing service, the child and family. The nurse must work with family members, identify their goals and needs and plan interventions that best meet the defined problem. Advocacy involves ensuring that families are aware of all available health services, informed adequately of treatments and procedures involved in the child care and encouraged to change or support existing health care practices. The professional nurse who emphasizes child health maintenance, the importance of growth and development to an optimal level and the prevention of disease and its complications and who assists children to return to their maximum level of functioning following illness, is a child advocate. The nurse who carries out the nursing process, maintain liaison with other personnel and functions as a teacher and consultant will fulfill the role of child advocate.
 
Family Advocate
The goal of family advocacy is to assist the families and individual members to develop and to function at their optimal level of ability. The advocate nurse becomes a coordinator, not relying on a single method or technique of intervention, but tailoring an approach to the problem at hand. In this kind of approach, the family's access to and use of information and of other services are important. Ultimately, a family advocate aims to provide families, individually and as a group with the technical and psychologic resources to solve their own problem. The advocate then suggests the family, in the decisions that are made. Such an effort commits the nurse to strengthening family life by helping break through barriers that prevent family members from receiving appropriate care. To achieve child and family advocacy, it is necessary to keep in mind that the UN approved the Declaration of the Rights of the Child (14th General Assembly, 1959), which provides guidelines for nursing practice to ensure that every child receives optimum care, which includes the following:
  • Mankind owes the child the best it has too give
  • The right to affection, love and understanding
  • The right to adequate nutrition and medical care
  • The right to free education
  • The right to full opportunity for play and recreation
  • The right to a name and nationality
  • The right to special care of handicapped
  • The right to be among the first to receive relief in times of disaster
  • The right to learn to be useful member of society and to develop individual abilities
  • The right to be brought up in a spirit of peace and brotherhood
  • The right to enjoy these rights, regardless of race, color, sex, religion, national or social origin. All children, without any exception whatsoever, shall be entitled to these rights, without distinction and discrimination.
The nurse translates these rights into their practice and uses this knowledge to adapt care for the child's optimum physical and emotional well-being, i.e. all children need the following:
  • To be free from discrimination
  • To develop physically, mentally in freedom and dignity
  • To have named and nationality
  • To have adequate nutrition, housing, recreation and medical service
  • To receive special care, if handicapped
  • To receive love, understanding, and material security
  • To receive an education and develop his or her abilities
  • To be the first to receive protection in disaster
  • To be protected from neglect, cruelty and exploitation
  • To be brought up in a spirit of friendship among people.
 
Direct Caregiver
As nurses care for children and families, they must demonstrate caring, expressing compassion and empathy for others. Caring or reverence for life is an essential ingredient in the role of the pediatric nurse. Caring acts and decisions 27are strong elements of the caring processes and treatment modalities carried out by health professional. Caring is a way of relating to others develops indepth through reciprocal trust and honesty. The caring nurse perceives children and their parents in having a dignity and worth of their own and as having potential for future development. Caring can become a way of life in which commitment results in nurses using themselves in therapeutic agents. In this situation, nurses willing to take risks and assume full responsibility for their outcomes. Commitments lead to a nurse to enter situation with patient or children that they cannot face alone. In the nurse-parent-child-relationship, health maintenance or recovery of the child occurs within the framework of caring for all family members.
Aspects of caring embody the concept of atraumatic care and the development of a therapeutic relationship with clients. Atraumatic care is the provision of therapeutic care-in settings, by personnel through the use of interventions that eliminates or minimizes the psychological and physiological distress experienced by children and their families in the health care system. Parents perceive caring as a sign of quality nursing care, which is often focused on the non-technical needs of the child and family. Parents describe ‘personable’ care as actions by the nurse, including acknowledging the parents presence, listening, making the parents feel comfortable in the hospital environment, involving the parent and children in the nursing care, showing interest and concern for their welfare, showing affection and sensitivity to the parent and child, communicating with them and individualizing nursing care. Parents perceive ‘personable’ nursing care as being integral to establishing in positive relationship.
Caring and curing has been used simultaneously in many circumstances. Caring refers to act of helping, guiding and counseling. Curing refers to acts of diagnosis and treatment. Curing occurs, usually when the client is ill, whereas caring is continuous process in both wellness and illness states. When caring for children and families, it is important for the nurse to express individual personal needs and desires honestly and openly. Subservience in the nursing role may lead to anxiety and tensions in the nurses and reduce the effective level of caring. On the other side, assertiveness increase one's sense of work as a person and improves interpersonal communication and interactions, thus permitting the expression of an attitude of caring by the nurse. To care for clients and to assist in curing, it is also important for nurse to understand their own attitudes, based on their values and ethical beliefs. Value are a set of personal beliefs and attitude about the truth, beauty, worth of any thought, object of behavior. They are action oriented and give direction and meaning to one's life. Values serve as guides to life: they provide a basis for living and a direction in which to move and grow. Nurses especially need to recognize, what they value about their own health.
Today, trend toward health care have been prevention of illness and maintenance of health, rather than treatment of disease or disability. Nursing has kept pace with this change. Health promotion and the prevention of illness, health maintenance and health restoration are three areas of care to be considered in assisting children and their families to achieve highest level of wellness possible. The role of the nurse is to complement the activities, such individuals in their own self-care and to provide compensatory care, when they cannot fulfill these needs. These three areas are considered to be the goals of the nurse.
Pediatric nursing is different from other clinical specialities in nursing. First, the nurse must enjoy working with children of all ages. A great deal of time is spent with an individual child. Second, when a child has a health problem, it is the child, the disease and the family that becomes a nursing concern, one cannot be separated from the other two. It is family-centered nursing in its truest sense.
 
Health Teacher
A major role of the nurse is teaching—teaching the child and the members of the family units. Health teaching is inseparable from family advocacy and preventive role. It may be a direct goal of the nurse, such as during parent classes or may be indirect such as helping parents and children to understand a diagnosis or medial treatment, encouraging children to ask questions about their bodies, referring families to health-related professional or lay groups, supplying parents with appropriate literature and providing anticipatory guidance.
There are number of opportunities for teaching that are presented daily to the nurse and members of the health team. While conducting the initial assessment, the nurse can identify areas for teaching related to the child's illness, parents concerns and topics for discharge planning. Information can be gathered that, while assist in identifying their level of understanding, their readiness to learn their depth of knowledge or lack of it and their immediate needs. The nurse should create an environment, should be conducive to teaching-learning process. It should be quiet and well-lighted, with adequate space for any equipment to be used. The child and family should be prepared in advance by informing them of the purpose of the session. Audiovisual aids may be used to supplement verbal instructions and demonstrations given by the nurse. The nurse should develop a teaching plan, which is documented on the child's record. Teaching session may be specific to information of the child's illness, growth and developmental needs for anticipatory guidance, relationship within the family, parents concerns regarding siblings and principles supportive of health maintenance and promotion. Health teaching is often one area in which nurses need preparation and practice with competent role models, 28because it involves transmitting information at the child's and family's level of understanding and desire for information. As an effective educator/teacher, the nurse focuses on providing the appropriate health teaching with generous feedback and evaluation to promote learning.
 
Coordinator and Collaborator
The nurse who cares for children not only works with the individual child, the family unit and the nursing team, but also cooperates with members of health team, the physician, social worker, nutritionist, school teacher, community health nurse, etc. The nurse, who is a member of a nursing team works closely with one or more nurses, nursing students, nurse attendants and others in a joining effort, usually in secondary or tertiary care setting to function as a leader/coordinator or member of this team; the nurse must understand the comprehensive care of patient assigned to the team and be willing to contribute to their optimal care.
The nurse, as a member of the health care team, collaborates and coordinates nursing services with the activities of other professional working in isolation, does not serve the childs best interest. The concept of ‘holistic care’ can be realized only through a unified interdisciplinary approach. Second, being aware of individual contributions and limitations to the child's care, the nurse must collaborate will other specialists to provide high-quality health services.
The individual nurse must function, not only in areas of episodic or distributive care, but also in broader community efforts. Even nurse who practices in isolated geographic areas, widely separated from other health professionals cannot be considered independent. Every nurse works interdependently with the child and family, collaborating on needs and interventions to that final care plan in one aspect of collaboration and coordination that is lacking in health care planning. Many disciplines and often work together to formulate a comprehensive approach without consulting with clients regarding their ideas or preferences. The nurse is the vital position to include consumers in their cars, either directly or indirectly communicating their thoughts to the health care team.
 
Ethical Decision Maker
Nurse may face ethical issues regarding patients care, such as the use of lifesaving measures for very low-birthweight new- borns or the terminally ill child's right to refuse treatment. They may struggle with questions regarding truthfulness, balancing their rights and their responsibilities in caring for children with major problems or resource allocation. Ethical dilemmas arise when competing moral considerations underlie various alternatives. Parents, nurses, physicians and other health care team members may reach different, but morally defensible decisions by assigning different weight to competing moral values. These competing moral values may include:
  • Autonomy, the patient's right to be self-governing
  • Non-maleficence, the obligation to minimize or prevent harm
  • Beneficence, the obligation to promote the patients well-being
  • Justice, the concepts of fairness.
Thus, nurses must determine the most beneficial or least harmful action within the framework of societal mores, professional practice standards, the law, institutional rules, religious traditions, the family value system and the nurses personal values.
When ethical conflicts occur, nurses may experience conflicting loyalties to their profession, colleagues, patients and families, institutions and society. Moreover, the nurses, role is ethical, decision making can be ambiguous. A nurse's may be obliged to carry out procedures that are based on physician orders or hospital policy, but inconsistent with the patients best interest. At times members of the health care do not seek the nurse's input or involvement. Learning the nurse with incomplete information, about the clinical situation or without a voice in decision making.
The role of nurses as members of the health care team justifies their participation in collaborative ethical decision making. Nurses routinely use a systematic problem-solving method known as ‘nursing process’ to resolve clinical problem. Each decision requires the nurse to collect pertinent physiologic and psychosocial data, assess relevant values held by the patient and family and incorporate these data into a plan of care. Each of these activities is a crucial component of ethical decision making.
Since nurses spend the most time directly caring for the child, they are in a unique position to provide insight about the patients condition and response to therapy. In addition, they assist families in dealing with their grief and stress and often interpret information regarding the child's condition, prognosis and treatment options to help families to make informed decisions. Because of their relationship to families, nurses are often able to represent the child's and parent's values, beliefs and preferences, thus serving as an important liaison for communication between the family and other's health care team members. Participation in ethical decisions making requires knowledge of ethical theory and principles, as well as skills in moral reasoning, communication and group processes. Nurse share an individual responsibility to clarify their personal values and beliefs and to be informed about contemporary ethical thinking, legal, institutional and public policy and professional guidelines. The nurses also use the professional code of ethics for guidance, as it focuses on 29the nurses accountability and responsibility to the client and emphasizes the nursing role as an independent professional role that uphold its own legal liability. Nurses must prepare themselves systematically for collaborative ethical decision making through formal course work, continuing education, contemporary literature and working to establish and environment conducive to ethical discourse and utilisation of available facilities.
 
Expanded Roles of Pediatric Nurse
In addition to all the above roles, the nurses are also expected to expand their role in conducting research, participate in health care planning and assume other higher and higher roles according to advancement in the field of science, including medical science and technological advances, i.e. provider of care to manager of care (Fig. 1.3).
The professional pediatric nurse provides three levels of health care services: primary, secondary and tertiary. The primary level of service focuses on health promotion and illness prevention and typically occurs in the community. The pediatric nurse may provide this level of service in a variety of settings, including health clinics or offices, schools, homes, day-care centers and summer camps. The secondary level of service is generally provided in acute treatment centers that focus on the diagnosis and treatment of illness. The pediatric nurse functions at the secondary level when working in settings, such as general pediatric hospital units, pediatric intensive care units, emergency departments, ambulatory clinics, surgical centers and psychiatric centers. The tertiary level of service involves restorative, rehabilitative or quality-of-life care and takes place in rehabilitation centers or hospice programs or through service with a home health agency.
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Figure 1.3: Advanced practice role of pediatric nurse
The primary role of the pediatric nurse is to provide direct nursing care to children and their families, being an advocate, educator and manager. As a child and family advocate, the nurse safeguards and advances the interests of children and their families by knowing their needs and resources, informing them of their rights and options and assisting them to make informed decisions. In the primary role of educator, the nurse instructs and counsels children and their families about all aspects of health and illness. The pediatric nurse uses and integrates research findings to establish evidence-based practice, managing the delivery of care in a cost-effective manner to promote continuity of care and an optimal outcome for the child and family.
In the secondary role, the pediatric nurse serves as a collaborator, care coordinator and consultant. Collaborating with the interdisciplinary health care team, the pediatric nurse integrates the child's and family's needs into a coordinated plan of care. In the role of consultant, the pediatric nurse ensures that the child's and family's needs are met through such activities as support group facilitation or working with the school nurse to plan the child's care.
Although nurses in each setting might have specific roles and responsibilities, they all share universal roles that can be identified as primary and secondary roles, the differentiated practice role and the advanced practice role. Within all of these roles, the nurse ensures that communication with the child and family is based on the child's age and developmental level.
In the differentiated practice role, the nurse's experience, competence and educational level, determine the nurse's role. For example, a clinical coordinator typically holds a baccalaureate degree and fills a leadership role in a variety of settings. The case manager, also usually a baccalaureate-prepared nurse, is responsible for integrating care from before admission to after discharge.
The advanced practice role is an expanded nursing role that requires additional education and skills in the assessment and management of children and their families. The pediatric nurse practitioner (PNP) has a master's degree and national certification in the specialty area. The PNP is an independent and autonomous practitioner, managing children in primary, acute or intensive care or providing long-term management of the child with a chronic illness. The clinical nurse specialist has a master's degree and provides expertise as an educator, clinician or researcher, meeting the needs of staff, children and families.
Various changes in the health care system continue to encourage the development of the advanced practice role for pediatric nursing. Table 1.2 describes the functions of the family nurse practitioner, the neonatal nurse practitioner and the pediatric nurse practitioner, as well as the pediatric clinical specialist and case manager.
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Table 1.2   Advanced practice roles for pediatric nurses
Role
Function
Pediatric nurse practitioner (PNP)
  • Provides health maintenance care for children (well-child examinations, developmental screening, immunizations, anticipatory guidance and school physicals)
  • Diagnoses and treats common childhood illnesses
  • Provides care to acutely, chronically or critically ill children (performs in-depth physical assessments and health histories, interprets laboratory and diagnostic tests, prescribes medications and performs therapeutic treatments) (National Association of Pediatric Nurse Practitioners, 2006).
Family nurse practitioner (FNP)
  • Provides health care to individuals throughout the life span
  • Performs health assessments, orders interprets diagnostic and laboratory tests, prescribes pharmacologic and non-pharmacologic treatments (American Academy of Nurse Practitioners, 2002).
Neonatal nurse practitioner (NNP)
  • Differentiates the nurse practitioner role to the care of toe newborn
  • Functions in similar manner to the PNP or FNP, but within the newborn nursery or neonatal intensive care unit (National Association of Neonatal Nurses, 2002).
Clinical nurse specialist—specialist in specific pediatric areas, such as pediatric oncology, clinical nurse specialist
  • Serves as a consultant in a particular area of expertise
  • Researches, educates and serves as a role model for expert nursing care in specialty field (National Association of Clinical Nurse Specialists).
Case manager—specialist in pediatric hospitals and other pediatric health care settings
  • Supervises, a group of patients from the time they enter a health care setting, until they are discharged from the setting
  • Monitors effectiveness, cost and patient satisfaction.
 
STANDARDS OF CARE AND PROFESSIONAL PERFORMANCE OF PEDIATRIC NURSE
In any role, the professional pediatric nurse is held accountable for nursing actions that adhere to the standards of care. A standard of care is a minimally accepted action expected of an individual of a certain skill or knowledge level and reflects, what a reasonable and prudent person would do in a similar situation. Professional standards from regulatory agencies, state or federal laws, nurse practice acts and other specialty groups regulate nursing practice in general. The specific standards of care and professional performance for child health nursing practice (Table 1.3). These standards are tools that determine, if care constitutes adequate, effective. and acceptable nursing practice. They also serve as guides and legal measures for this special area of practice. These standards promote consistency in practice, provide important guidelines for care planning, assist with the development of outcome criteria and ensure quality nursing care. The Society for Pediatric Nurses (SPN)-American Nurses Association (ANA) standards specify what is adequate and effective for general pediatric nursing and promote consistency in practice.
Child health or pediatric nursing is the practice of nursing involved in the health care of children from infancy through adolescence. In India, number of children under age 18 years is approximately accounting for 40 percent of the population. The definition of nursing, “the diagnosis and treatment of human responses to actual or potential health problems,” also applies to the practice of pediatric nursing. However, the overall goal of pediatric nursing practice is to promote and assist the child in maintaining optimal levels of health, while recognizing the influence of the family on the child's well-being. This goal involves the practice of health promotion and disease prevention, as well as assisting with care during disease or illness.
The pediatric nurse must have been observation skills, especially when caring for infants and toddlers or children who are critically ill. Some children have minimal communication abilities and pain, thirst or other discomfort must be interpreted. Also, the developmental ages of children can be assessed by watching them play or perform certain tasks. In addition, not all birth defects (congenital anomalies) are diagnosed in the newborn period and a nurse may identify a problem as a result of a physical assessment. When children are very ill, minor changes in their physical status can result in a variety of complications and therefore, any changes must be noted as early as possible. These examples, identify the role observation plays in clinical practice.
Supporting a child through a difficult procedure or serious illness is an activity in which a pediatric nurse commonly becomes involved. Such an endeavor not only includes preparation for the event, it requires establishing a level of trust, which permits the child to express his fear apprehension and anxiety. To establish a trusting relationship, a nurse must convey respect to the child, talk with him at a level of trust, which permits the child to express his fear apprehension and anxiety.
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Table 1.3   Standards of child health nursing
Standards
Description
Standards of care
  • Assessment: The pediatric nurse collects health data
  • Diagnosis: The pediatric nurse analyzes the assessment data in determining diagnosis
  • Outcome Identification: The pediatric nurse identifies expected outcomes individualized to the client
  • Planning: The pediatric nurse develops a plan of care that prescribes interventions to obtain expected outcomes
  • Implementation: The pediatric nurse implements the interventions identified in the plan of care
  • Evaluation: The pediatric nurse evaluates the child's and family's progress toward attainment of outcomes.
Standards of professional performance
  • Quality of care: The pediatric nurse systematically evaluates the quality and effectiveness of pediatric nursing practice
  • Performance appraisal: The pediatric nurse evaluates his or her own nursing practice in relation to professional practice standards and relevant statutes and regulations
  • Education: The pediatric nurse acquires and maintains current knowledge in pediatric nursing practice
  • Collegiality: The pediatric nurse contributes to the professional development of peers, colleagues and others
  • Ethics: The pediatric nurse's decisions and actions on behalf of children and their families are determined in an ethical manner
  • Collaboration: The pediatric nurse collaborates with the child, family and health care provider in providing client care
  • Research: The pediatric nurse uses research findings in practice
  • Resource utilization: The pediatric nurse considers factors related to safety, effectiveness and cost in planning and delivering care.
To establish a trusting relationship, a nurse must convey respect to the child, talk with him at a level he can understand and most important be honest with him.
Teaching is on-going in pediatrics. It can range from explaining the effects of a medication to an 8-year-old to helping the parents to learn how to give an intramuscular injection to their infant. There are also innumerable opportunities to help children and parents adapt to a chronic illness or disorder, which requires a nurse's knowledge of community resources or volunteer agencies available for equipment or support.
A pediatric nurse also functions as a child and family advocate, whether those activities involve an ethical decision or the quality of care given. This may involve a nurse coordinating the activities of a health team and collaborating with members of different disciplines to provide a children with the expert care that is required.
Being able to communicate effectively with a child is essential. However, to enjoy and continue working in pediatrics, a nurse must recognize and appreciate the uniqueness that each child or adolescent brings to nurse-patient relationship. It is that special quality, uniqueness, that should be understood, respected and practiced by anyone who provides care for children.
 
CURRENT TRENDS IN CHILD HEALTH CARE
 
Family-Centered Care
Family-centered pediatric nursing is a new and broadened concept in the health care system of the United States (US). No longer are children treated merely as clinical cases with attention given exclusively to their medical problems. Instead, health care providers recognize that children belong to a family, a community and a particular way of life or culture and that their health is influenced by these and other factors. Separating children from their backgrounds, means that their needs are met only in a superficial manner, if at all. Even if nursing takes place entirely inside hospital walls, family-centered care pays attention to each child's unique emotional, developmental, social and scholastic needs, as well as physical ones. Family-centered nursing care also strives to help family members alleviate their fears and anxieties and to cope, function normally and understand the child's condition and their role in the healing process.
 
Regionalized Care
During the past several decades, there has been a definite trend toward centralization and regionalization of pediatric services. Providing high-quality medical care for the at-risk patient necessitated transporting the child to medical-teaching centers with the best resources for diagnosis and treatment. To contribute to economic responsibility by avoiding duplication of services and equipment, the most intricate and expensive services and the most highly specialized personnel were made available in the centralized location: perinatologists, neonatologists, pediatric neurologists, adolescent allergy specialists, pediatric oncologists, nurse play therapists, child psychiatrists, neonatal and pediatric nurse practitioners and clinical nurse specialists. In these large regional centers, there are geneticists, at-risk antenatal units, neonatal intensive care units, computed tomography (CT) scanners, bum care units and other highly specialized equipment and units.
32Regionalized care often takes the pediatric patient far from home. Family caregivers must travel a longer distance to visit than if the patient were at a local suburban hospital. Family-centered care becomes even more important under these circumstances. Measures are taken to keep the hospitalization as brief as possible and the family close and directly involved in the patient's care. For the child in particular, separation from the family is traumatic and may actually retard recovery. Many of these regionalized centers (tertiary care hospitals) have accommodations, where families may stay during the hospitalization of the child.
 
Advances in Research
Huge technological and scientific advances were made at the same time the movement for family-centered care was gaining momentum. It became possible to, save premature and low-birthweight infants, who previously would not have survived. Diagnostic techniques were perfected. Surgical techniques to intervene on the fetus, while in utero were developed. New research and techniques have made it possible to detect and treat children born with congenital problems and disorders, almost immediately after birth. Pediatric specialists and specialty units add to the ability to treat childhood disorders sooner, thus decreasing the disorder's effect on the child and family. These are only a few examples of the research that has been done.
Gene therapy is used to treat certain immune disorders. Scientists are studying ways to prevent and treat genetic disorders with gene therapy, which likely will be possible in the near future. Many animal, human and stem cell studies are being done to better understand and treat a variety of disorders. Current studies include the identification of genes that are responsible for the unique characteristics of Down syndrome and therapies to treat intrauterine growth retardation (IUGR), a condition in which the fetus fails to gain sufficient weight.
 
Bioethical Issues
An ethical issue is one in which there is no one ‘right’ solution that applies to all instances of the issue. Ethical decision making is a complex process that should involve many groups of individuals with varying experiences and perspectives. Recent scientific and medical advances have raised bioethical issues that did not exist in times past. Examples of bioethical issues that are present in our world today, include the Human Genome Project, prenatal genetic testing, surrogate motherhood and rationing of health care.
The Human Genome Project (HGP) was started in 1990 with the purpose of studying all of the human genes and how they function. New concepts and ideas regarding many aspects of health and disease emerge as the project continues. Identification of gene mutations in people, who may be carriers of genetic disorders or who maybe at risk for developing inherited disorders later in life, has been a big part of the research findings in the project. Genetic testing and counseling is one area that has been greatly affected by the HGP. A predisposition to certain diseases that become evident in adulthood is also being studied through the HGP. The ability to study the human gene and factors related to the inheritance of disease and disorders has an impact on the future health of all individuals.
Today, it is possible to know many things about a child before the child is born. Ultrasound can reveal the gender of the fetus and certain abnormalities early in pregnancy. Amniocentesis and chorionic villus sampling, show the entire genetic code of the fetus. In this way, many chromosomal abnormalities can be diagnosed during the first trimester. Decisions can be made about continuing with the pregnancy or preparing to cope with a child, who has a genetic disorder. Some parents want to know everything possible before the child is born, whereas others do not wish to interfere with the natural order of things and decline any type of prenatal testing.
Many ethical questions can be raised regarding prenatal testing. Is it right to end a pregnancy because a child has a mild genetic abnormality? Will we become a society in which a child can be chosen or rejected for life based on his or her genetic code? Is it right to bring a child into the world with a severe defect, which may cause the child and his or her caregivers untold pain and suffering? Is it okay to make life and death decisions based on quality of life? Or is any form of life sacred regardless of the quality? These and other questions have been raised in light of technology that makes prenatal diagnosis possible.
Surrogacy is an arrangement, whereby a woman or a couple who is infertile contract with a fertile woman to carry a child. The fetus may result from in vitro fertilization techniques; embryos created from such techniques are subsequently implanted in the surrogate woman's womb to be carried to term. At other times the surrogate mother is impregnated by artificial insemination with the sperm of the male partner or with the sperm of an unknown donor.
Surrogate motherhood is a situation fraught with ethical dilemmas. Many questions surround this issue: Who has the right to make decisions about the pregnancy? Who is legally obligated for the unborn child? What if one or the other of the parties changes their minds before the end of the pregnancy? What if the infant is born with a genetic disorder that leaves him or her physically or mentally disabled?
A phenomenon that some have referred to as ‘rationing of health care’ is on the rise. On the one hand, there have been enormous advances in knowledge/technology and the ability to intervene to change outcomes. Some conditions that were 33untreatable in the past, can now be treated and even cured. On the other hand, individuals who live in poverty are less likely than persons of higher socioeconomic status to have access to these treatments and cures. Examples of ethical questions that arise in this situation include: To which services should all citizens have access, regardless of ability to pay? What services are appropriate to exclude, if the consumer cannot afford payment?
 
Demographic Trends
Several demographic trends are influencing the delivery of child health care in the US. The aging of society and the tendency of American families to have fewer children have caused a shift in focus from the needs of women and children to those of the elderly. This trend has shifted fund allocation away from health care programs and research that enhance the health care of children.
The growing percentage of minority populations in relation to white, non-Hispanic populations in the US will continue to affect health care. Nurses and other health care providers are expected to provide culturally appropriate care. The use of non-traditional methods of healing and over-the-counter herbal remedies must be assessed and integrated into the plan of care. More and more nurses are expected to accommodate the unique needs of these populations.
 
Poverty
One social issue that greatly influences pediatric care is the problem of poverty. A woman who lives in poverty is less likely to have access to adequate prenatal care. Poverty also has a negative impact on the ability of a woman and her children to be adequately nourished and sheltered. A woman who lives in poverty is at risk for substance abuse and exposure to diseases such as tuberculosis, HIV/AIDS and other STIs. Each of these factors has been linked to adverse outcomes for child-bearing women and their children.
 
Cost Containment
Cost containment refers to strategies developed to reduce inefficiencies in the health care system. Inefficiencies can occur in the way health care is used by consumers. For example, taking a child to the emergency department (ED) for treatment of a cold is inappropriate use. It would be more efficient for the child's cold to be treated at a clinic.
Inefficiencies also can relate to the setting in which health care is given. For example, in the past all surgical patients were admitted to the hospital the night or sometimes, even several days, before the scheduled procedure. This practice was found to be an inefficient use of the hospital setting. It was discovered that the patient could be prepared for surgery more efficiently on an outpatient basis, without reducing quality.
Inefficiencies also can exist in the way health services are produced. For example, a pediatric intensive care unit (PICU) is a highly specialized, costly unit to operate. If every hospital in a large city were to operate a PICU, this would be an inefficient production of health services. It is more cost-effective to have one large PICU for the entire region.
 
Cost-Containment Strategies in Health Care
Health care costs continue to increase at a rate out of proportion to the cost of living. This situation has challenged local, state and federal governments; insurance payers and providers and consumers of health care to cope with skyrocketing costs, while maintaining quality of care. Some major strategies that have been implemented to help control costs, include prospective payment systems, managed care, capitation, cost sharing, cost shifting and alternative delivery systems.
Prospective payment systems: It predetermines rates to be paid to the health care provider to care for patients with certain classifications of diseases. These rates are paid regardless of the costs that the health care provider actually incurs. This system tends to encourage efficient production and use of resources. Prospective payment systems were developed by the government in an attempt to control Medicare costs.
Managed care: It is a system that integrates management and coordination of care with financing in an attempt to improve cost-effectiveness, use, quality and outcomes. Managed care evolved from the old ‘fee-for-service’ type of health insurance in which providers of care were paid the amount they billed to provide a service. Under managed care plans, both the provider of service and the consumer have responsibilities to help control costs.
Capitation: It is one method managed care plans have used to reduce costs. The health care plan pays a fixed amount per person to the health care provider to provide services for enrollees. This amount is negotiated up front and the health care provider is obligated to provide care for the negotiated amount, regardless of the actual number or nature of the services provided.
Cost sharing and cost shifting: The cost sharing refers to the costs that the patient incurs, when using his or her health insurance plan. Examples of cost sharing are copayments and deductibles. When costs go up, health insurance plans often increase the amount of deductibles and copayments, before they raise the price of the insurance premium, Cost shifting is a strategy in which the cost of providing uncompensated 34care for uninsured individuals is passed onto people, who are insured. Often, cost shifting results in higher premiums, copays and deductibles.
Alternative delivery systems: Another way to control costs is to provide alternative delivery systems. In this situation, alternatives to expensive inpatient services are provided. Many hospitals found that it was more cost efficient to send a patient home earlier and provide follow-up care using a home health agency. Skilled and intermediate nursing and rehabilitation facilities and hospice programs are other examples of alternative delivery systems.
 
Nursing Contribution to Cost Containment
Specific cost-containment strategies that nurses have been instrumental in implementing include health promotion, case management and critical care paths. Nurses are the primary providers of utilization review, which is a systematic evaluation of services delivered by a health care provider to determine appropriateness and quality of care, as well as medical necessity of the services provided.
Nurses have long advocated health promotion activities as a valuable way to maintain quality of life and control health care costs. Health promotion involves helping people to make lifestyle changes to move them to a higher level of wellness. Health promotion includes all aspects of health: physical, mental, emotional, social and spiritual. Many nurses and nursing organizations lobby for increased spending on health promotion and illness prevention activities. For example, nurses may testify at a public hearing that it is more cost-effective to provide comprehensive prenatal care for low-income women than to pay high ‘back-end’ costs of highly specialized care in a PICU for a preterm infant. Nurses also may lobby for low-cost programs to provide periodic, screening examinations in schools. The argument in this example is that it is cheaper to treat illness states when they are caught early in a screening program than to provide care when a disease is well advanced and harder to treat.
Although nurses are not the only licensed professionals qualified to provide case management, many case managers are nurses. Case management involves monitoring and coordinating care for individuals, who need high-cost or extensive health care services. A child with diabetes is a good candidate for case management, because the child requires frequent monitoring of blood sugars and coordination of several health care providers.
Concerns about cost containment, quality improvement and managed care have led to the development of a system of standard guidelines, termed critical pathways, in many facilities. Critical pathways are standard plans of care used to organize and monitor the care provided. They include all aspects of care, such as diagnostic tests, consultations, treatments, activities, procedures, teaching and discharge planning. Other names for clinical pathways are care maps, collaborative care plans, case management plans, clinical paths and multidisciplinary plans. To ensure success, the critical pathways must be a collaborative effort of all disciplines involved; all members of the health team must follow them.
The nursing process is part of the underlying framework of critical pathways. Nursing diagnoses and intermediate and discharge outcomes are necessary to avoid fragmenting care. Documentation of nursing interventions and outcomes is essential to the overall process. The nurse must thoroughly understand the nursing process to achieve accountability when providing care in a setting.