Essentials of Community-based Rehabilitation Satya Bhushan Nagar
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Introduction to Rehabilitation MedicineChapter 1

 
INTRODUCTION: REHABILITATION MEDICINE AND PHYSIATRY
Medicine evolves to reflect the needs of society. This evolution is commonly viewed to be driven by scientific research advances. However, factors on a macroscopic, population level can be equally influential.
Three such factors in the 20th century led to the creation of a new specialty, physical medicine and rehabilitation. For much of the last century, medicine revolved around the concept of saving lives. The result has been prolonged quantity of life with an increase in the prevalence of chronic disease. During the same decades, armed conflicts not only redefined geographic maps but also enhanced the public’s awareness of people with disabilities; in some instances, this group came to represent a new segment of society. In addition, the polio epidemic of the 1950s left many people with friends and family members with disabilities, and the presidency of Franklin Roosevelt in the United States led to an awareness that a disability does not have to be a social handicap. The recognition of the inherent value of people with disabilities and of their needs resulted in the development of the specialty of physical medicine and rehabilitation. At its most 2 basic, this specialty focuses on maximizing a person’s independence through medical, psychological or physical treatments or through modifications to their environment.
Common causes of disability requiring complex rehabilitation include cardiovascular diseases, respiratory ailments and arthritis. Less common but potentially devastating conditions such as spinal cord injury, acquired brain injury, amputation and congenital neurologic or musculoskeletal conditions often require lifelong medical follow-up. Each of these conditions presents its own subset of medical complications and rehabilitation needs. Fortunately for the physician, some of the complications and needs overlap between conditions. For example, understanding the principles of spasticity management can help the clinician to treat the child with cerebral palsy, the adult with a spinal cord injury and the elderly patient with a stroke.
It is very difficult to define the physiatry in a single word. While the fields of neurology or orthopedic deal with nerve and brain or bones and joints, like as physiatry focuses on assisting the general improvement of functional recovery in disabled patients. Historically physiatry originated from two different fields, physical medicine and rehabilitation. According to Dorland dictionary, the word” physio” which means nature and” iatrke” which means operation or medicine. Therefore, the physiatry involves treating and diagnosing diseases using light, heat, cold, and electricity. Between the late 1930s and early 1940s doctor who treated arthritis using ultrasound or microwaves were called physical therapy physicians which is the origin of the term physiatrist.
 
DEFINITION: REHABILITATION MEDICINE
Physical medicine and rehabilitation (PM and R), also known as physiatry or rehabilitation medicine, is a branch of medicine that aims to enhance and restore functional ability and quality of life to those with physical impairments or disabilities.
 
Scope of Rehabilitation Medicine
Common conditions that are treated by rehabilitation physicians include
  • Amputation
  • Spinal cord injury
  • 3 Sports injury
  • Stroke
  • Musculoskeletal pain syndromes such as low back pain
  • Fibromyalgia, and
  • Traumatic brain injury.
Cardiopulmonary rehabilitation involves optimizing function in those afflicted with heart or lung disease. Chronic pain management is achieved through a multidisciplinary approach involving psychologists, physical therapists, exercise therapists, anesthesiologists, and interventional procedures when indicated.
Stroke, in addition to the previous methodology, is often treated with the help of a speech therapist and recreational therapist when possible. Physical medicine and rehabilitation physicians utilized electrodiagnostic medicine studies to help diagnose patients with symptoms of numbness, cramps or tingling.
 
Amputation
Amputation is the removal of a limb by trauma, medical illness, or surgery. As a surgical measure, it is used to control pain or a disease process in the affected limb, such as malignancy or gangrene. In some cases, it is carried out on individuals as a preventative surgery for such problems. A special case is that of congenital amputation, a congenital disorder, where fetal limbs have been cut off by constrictive bands. In some countries, amputation of the hands, feet or other body parts is or was used as a form of punishment for people who committed crimes. Amputation has also been used as a tactic in war and acts of terrorism; it may also occur as a war injury. In some cultures and religions, minor amputations or mutilations are considered a ritual accomplishment. Unlike some non-mammalian animals (such as lizards that shed their tails, salamanders that can regrow many missing body parts, and hydras, flatworms and starfish that can regrow entire bodies from small fragments), once removed, human extremities do not grow back, unlike portions of some organs, such as the liver. A transplant or prosthesis is the only options for recovering the loss.
 
Spinal Cord Injury
A spinal cord injury (SCI) is damage to the spinal cord that causes changes in its function, either temporary or permanent (Fig. 1.1).
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Fig. 1.1: Spinal cord with associated structure
These changes translate into loss of muscle function, sensation or autonomic function in parts of the body served by the spinal cord below the level of the lesion. Injuries can occur at any level of the spinal cord and can be classified as complete injury, a total loss of sensation and muscle function, or incomplete, meaning some nervous signals are able to travel past the injured area of the cord. Depending on the location and severity of damage along the spinal cord, the symptoms can vary widely, from pain or numbness to paralysis to incontinence. The prognosis also ranges widely, from full recovery in rare cases to permanent tetraplegia (also called quadriplegia) in injuries at the level of the neck, and paraplegia in lower injuries. Complications that can occur in the short- and long-term after injury include muscle atrophy, pressure sores, infections, and respiratory problems.
In the majority of cases, the damage results from physical trauma such as car accidents, gunshots, falls, or sports injuries, but it can also result from no traumatic causes such as infection, insufficient blood flow, and tumors. Efforts to prevent SCI include individual measures such as using safety equipment, societal measures such as safety regulations in sports and traffic, and improvements to equipment. Known since ancient times to be a catastrophic injury and long believed to be untreatable, SCI has seen great improvements in its care since the middle of the 20th century. Treatment of spinal cord injuries starts with stabilizing the spine and controlling inflammation to prevent further damage. Other interventions needed can vary widely depending on the location and extent of the injury, from bed 5 rest to surgery. In many cases, spinal cord injuries require substantial, long-term physical and occupational therapy in rehabilitation, especially if they interfere with activities of daily living. Research into new treatments for spinal cord injuries includes stem cell implantation, engineered materials for tissue support, and wearable robotic exoskeletons.
 
Stroke
Stroke, also known as cerebrovascular accident (CVA), cerebrovascular insult (CVI), or brain attack, is when poor blood flow to the brain results in cell death. There are two main types of stroke: ischemic, due to lack of blood flow, and hemorrhagic, due to bleeding. They result in part of the brain not functioning properly. Signs and symptoms of a stroke may include an inability to move or feel on one side of the body, problems understanding or speaking, feeling like the world is spinning, or loss of vision to one side among others. Signs and symptoms often appear soon after the stroke has occurred. If symptoms last less than one or two hours it is known as a transient ischemic attack (TIA). Hemorrhagic strokes may also be associated with a severe headache. The symptoms of a stroke can be permanent. Long-term complications may include pneumonia or loss of bladder control (Fig. 1.2).
The main risk factor for stroke is high blood pressure. Other risk factors include tobacco smoking, obesity, high blood cholesterol, diabetes mellitus, previous TIA, and atrial fibrillation among others. An ischemic stroke is typically caused by blockage of a blood vessel. A hemorrhagic stroke is caused by bleeding either directly into the brain or into the space surrounding the brain. Bleeding may occur due to a brain aneurysm. Diagnosis is typically with medical imaging such as a CT scan or MRI scan along with a physical exam. Other tests such as an electrocardiogram (ECG) and blood tests are done to determine risk factors and rule out other possible causes. Low blood sugar may cause similar symptoms.
Prevention includes decreasing risk factors as well as possibly aspirin, statins, surgery to open up the arteries to the brain in those with problematic narrowing, and warfarin in those with atrial fibrillation. A stroke often requires emergency care. An ischemic stroke, if detected within three to four and half hours, may be treatable with a medication that can break down the clot. Aspirin should be used. Some hemorrhagic strokes benefit from surgery.
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Fig. 1.2: Illustration of an embolic stroke showing a blockage lodged in a blood vessel
Treatment to try recover lost function is called stroke rehabilitation and ideally takes place in a stroke unit; however, these are not available in much of the world.
In 2013, approximately 6.9 million people had an ischemic stroke and 3.4 million people had a hemorrhagic stroke. In 2010, there were about 33 million people who had previously had a stroke and were still alive. Between 1990 and 2010 the number of strokes which occurred each year decreased by approximately 10% in the developed world and increased by 10% in the developing world. In 2013, stroke was the second most frequent cause of death after coronary artery disease, accounting for 6.4 million deaths (12% of the total). About 3.3 million deaths resulted from ischemic stroke while 3.2 million deaths resulted from hemorrhagic stroke. About half of people who have had a stroke live less than one year. Overall, two-thirds of strokes occurred in those over 65 years old.
 
Low Back Pain
Low back pain is a common disorder involving the muscles, nerves, and bones of the back. Pain can vary from a dull constant ache to a sudden sharp feeling. Low back pain may be classified by duration as acute (pain lasting <6 weeks), sub-chronic (6–12 weeks), or chronic (>12 weeks). The condition may be further classified by the 7 underlying cause as mechanical, non-mechanical, or referred pain. The symptoms of low back pain usually improve within a few weeks from the time they start, with 40–90% of people completely better by 6 weeks (Fig. 1.3).
In most episodes of low back pain, a specific underlying cause is not identified or even looked for, with the pain believed to be due to mechanical problems such as muscle or joint strain. If the pain does not go away with conservative treatment or if it is accompanied by “red flags” such as unexplained weight loss, fever, or significant problems with feeling or movement, further testing may be needed to look for a serious underlying problem. In most cases, imaging tools such as X-ray computed tomography are not useful and carry their own risks. Despite this, the use of imaging in low back pain has increased. Some low back pain is caused by damaged intervertebral Disks, and the straight leg raise test is useful to identify this cause. In those with chronic pain, the pain processing system may malfunction, causing large amounts of pain in response to non-serious events.
The treatment of acute nonspecific low back pain of rapid onset is typically with simple pain medication and the continuation of as much normal activity as the pain allows. Medications are recommended for the duration that they are helpful, with paracetamol (also known as acetaminophen) as the preferred first medication. A number of other options are available for those who do not improve with usual treatment. Opioids may be useful if simple pain medications are not enough, but they are not generally recommended due to side effects.
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Fig. 1.3: A herniated disk as seen an MRI, one possible cause of low back pain
8 Surgery may be beneficial for those with Disk-related chronic pain and disability or spinal stenosis. No clear benefit has been found for other cases of non-specific low back pain. Low back pain often affects mood, which may be improved by counseling or antidepressants. Additionally, there are many alternative medicine therapies, including the Alexander technique and herbal remedies, but there is not enough evidence to recommend them confidently. The evidence for chiropractic care and spinal manipulation is mixed. Approximately 9 to 12% of people (632 million) have LBP at any given point in time, and nearly 25% report having it at some point over any one-month period. About 40% of people have LBP at some point in their lives, with estimates as high as 80% among people in the developed world. Difficulty most often begins between 20 and 40 years of age. Men and women are equally affected. Low back pain is more common among people aged 40–80 years, with the overall number of individuals affected expected to increase as the population ages.
 
FIBROMYALGIA
Fibromyalgia (FM) is a medical condition characterized by chronic widespread pain and a heightened pain response to pressure. Other symptoms include feeling tired to a degree that normal activities are affected, sleep problems, and troubles with memory. Some people also report restless leg syndrome, bowel or bladder problems, numbness and tingling, and sensitivity to noise, lights or temperature. Fibromyalgia is frequently associated with depression, anxiety, and posttraumatic stress disorder other types of chronic pain are also frequently present.
The cause of fibromyalgia is unknown but believed to involve a combination of genetic and environmental factors with half the risk attributed to each. The condition runs in families and many genes are believed to be involved. Environmental factors may include psychological stress, trauma, and certain infections. The pain appears to result from processes in the central nervous system and the condition is referred to as a “central sensitization syndrome”. Fibromyalgia is recognized as a disorder by the US National Institutes of Health and the American College of Rheumatology. There is no specific diagnostic test. Diagnosis involves first ruling out other potential causes and verifying that a set number of symptoms are present.
9The treatment of fibromyalgia can be difficult. Recommendations often include getting enough sleep, exercising regularly, and eating a healthy diet. Cognitive behavioral therapy may also be helpful. Dietary supplements also lack evidence to support their use. While fibromyalgia can last a long time, it does not result in death or tissue damage.
Fibromyalgia is estimated to affect 2–8% of the population. Females are affected about two times more often than males. Rates appear similar in different areas of the world and among different cultures. Fibromyalgia was first defined in 1990 with updated criteria in 2011. There is controversy about the classification, diagnosis, and treatment of fibromyalgia. While some feel the diagnosis of fibromyalgia may negatively affect a person, other research finds it to be beneficial. The term “fibromyalgia” is from New Latin, fibro-, meaning “fibrous tissues”, Greek myo-, “muscle”, and Greek algos, “pain”; thus the term literally means “muscle and connective tissue pain”.
 
Traumatic Brain Injury
Traumatic brain injury (TBI), also known as intracranial injury, occurs when an external force traumatically injures the brain. TBI can be classified based on severity, mechanism (closed penetrating head injury), or other features (e.g. occurring in a specific location or over a widespread area). Head injury usually refers to TBI, but is a broader category because it can involve damage to structures other than the brain, such as the scalp and skull (Fig. 1.4).
TBI is a major cause of death and disability worldwide, especially in children and young adults. Males sustain traumatic brain injuries more frequently than do females. Causes include falls, vehicle accidents, and violence. Prevention measures include use of technology to protect those suffering from automobile accidents, such as seat belts and sports or motorcycle helmets, as well as efforts to reduce the number of automobile accidents, such as safety education programs and enforcement of traffic laws.
Brain trauma can occur as a consequence of a focal impact upon the head, by a sudden acceleration/deceleration within the cranium or by a complex combination of both movement and sudden impact. In addition to the damage caused at the moment of injury, brain trauma causes secondary injury, a variety of events that take place in the minutes and days following the injury.
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Fig. 1.4: CT scan of patient with brain trauma. Emergent CT imaging revealed a sagittally oriented skull fracture extending from the vertex to the foramen magnum as well as a transverse parietal and temporal bone fracture
These processes, which include alterations in cerebral blood flow and the pressure within the skull, contribute substantially to the damage from the initial injury.
TBI can cause a host of physical, cognitive, social, emotional, and behavioral effects, and outcome can range from complete recovery to permanent disability or death. The 20th century saw critical developments in diagnosis and treatment that decreased death rates and improved outcome. Some of the current imaging techniques used for diagnosis and treatment include computed tomography and MRI (magnetic resonance imaging). Depending on the injury, treatment required may be minimal or may include interventions such as medications, emergency surgery or surgery years later. Physical therapy, speech therapy recreation therapy, occupational therapy and vision therapy may be employed for rehabilitation. Counseling, supported employment, and community support services may also be useful.
 
DEFINITION: REHABILITATION
Rehabilitation is the utilization of the existing capacities of the handicapped person by the combined and coordinated use of medical, social, educational and vocational measures to the optimum level of his or her functional ability.11
 
Rehabilitation Process
  1. The rehabilitation process is different for everyone. Rehabilitation programs should be individualized, catering to each person’s unique needs. Just as no two people are exactly alike, no two-brain injuries are exactly alike. The person with a brain injury and his or her family should always be the most important members of the treatment team. Cultural, religious, social and economic backgrounds must always be taken into consideration when planning a person’s rehabilitation program.
  2. Rehabilitation channels the body’s natural healing abilities and the brain’s relearning process so than an individual recovers as quickly and efficiently as possible. Rehabilitation also involves learning new ways to compensate for abilities that have permanently changed due to brain injury. There is much that is still unknown about the brain and brain injury rehabilitation. Treatment methods and technology are rapidly advancing as knowledge of the brain and its functions increases.
  3. The goal of rehabilitation is to help people regain the most independent level of functioning possible.
 
Models of Rehabilitation
In the past, rehabilitation services for people with brain injury were largely provided in a “medical model,” located in a medical facility with a cadre of physicians, nurses, and trained professionals providing services. While this model still predominates, the trend today is toward more community-based rehabilitation models, and more options are available than ever before. Rehabilitation service delivery and funding are changing rapidly as managed care continues to replace the traditional fee-for-service and indemnity insurance plans.
 
Medical-based Rehabilitation
Early intervention is crucial. Rehabilitation should ideally start in the intensive care unit. At this point, rehabilitation is generally preventive in nature. Range of motion, bowel and bladder hygiene (i.e. initiation of regular bowel program and removing indwelling catheters), prevention of pressure sores, and orientation are all very important, right from the beginning. Frequently, rehabilitation activities initiated 12 in the ICU can reduce complications and sometimes, the length of hospitalization.
Acute Rehabilitation: Once a person is medically stable, transfer to an acute rehabilitation facility often occurs. There, he/she will spend several hours a day in a structured rehabilitation program. This program usually includes a team of professionals with training and experience in brain injury rehabilitation such as Physical Therapists (PT), Occupational Therapists (OT), Speech-Language Pathologists (SLP), and Neuropsychologists. Additional staffs support the brain injury rehabilitation team’s efforts, and often include case management, respiratory therapy, pharmacy, lab, nuclear medicine and radiology and dietary. A doctor with a specialty in Physical Medicine and Rehabilitation (PM&R), also known as a “physiatrist”, may head up the team.
“Subacute” Rehabilitation: People who are minimally aroused for a prolonged period often have limited attention and stamina, and need a less intensive level of rehabilitation services, over a longer period of time. Subacute rehabilitation may be provided in a variety of settings, but is often in a skilled nursing facility or nursing home. It is important to note that the services provided by subacute programs vary widely, as there is no generally accepted definition of subacute services at this time.
It is important to recognize that “more therapy” does not make a person “better”, but that “appropriate” therapy does. Subacute rehabilitation programs require the same appropriately trained professionals as acute rehabilitation programs do. The goals of subacute rehabilitation should include minimizing morbidity, maintaining functional positioning, hygiene, nutrition, and medication management, as well as providing support for the person with a brain injury and his/her family. Subacute rehabilitation programs may also be designed for persons who have made progress in the acute rehabilitation setting and are still progressing, but are not making rapid functional gains.
Day Treatment/Day Rehab: Day rehab (sometimes called “Day Hospital”) provides intensive rehabilitation in a structured setting during the day and allows the person with a brain injury to return home to their family at night. The treatment team is often made up of a variety of the same sort rehabilitation professionals found in acute rehabilitation.13
 
Community-based Rehabilitation
Outpatient Facilities: Following acute rehabilitation or subacute rehabilitation, a person with a brain injury may continue to receive outpatient treatment in specific areas (i.e. ongoing speech pathology to continue to work on cognition, or occupational therapy to work on driving, etc.). Often, this treatment can also be provided in the home by a home-health agency.
 
Home-based Rehabilitation
There are a few rehabilitation companies, which focus on providing acute rehabilitation within the home, or community setting. Once medically stable, some persons with a brain injury may be able to participate in such a program, if there is such a program in their community.
Community Re-entry: Community re-entry programs generally focus on developing higher-level motor and cognitive skills in order to prepare the person with a brain injury to return to independent living and potentially to work. Treatment may focus on safety in the community, interacting with others, initiation and goal setting and money management skills. Vocational evaluation and training may also be a component of this type of program. Community re-entry programs generally run for part or all of the day, with participants returning home to sleep and be with their families.
Transitional Living Programs: Transitional living programs provide housing for persons with brain injury, with the goal of regaining the ability to live as independently as possible. Sometimes, programs will have several different levels, depending on the level of need of the individual. In addition to physical, occupational, speech and recreation therapists, these programs usually have life skills technicians, who assist the person with a brain injury acquire skills and learn compensatory techniques, so they can live in the most independent setting.
 
REHABILITATION TEAM MEMBERS
A rehabilitation program is specifically designed for each individual depending on the injury, disorder, or illness. A multidisciplinary team approach for care and service is the basis of rehabilitation treatment. Multidisciplinary refers to the fact that many different disciplines 14 work together toward a common goal. The team is usually directed by a physiatrist. Other specialists play important roles in the treatment and education process. Team members involved depend on many factors. These include patient need, facility resources, and insurance coverage for services.
The multidisciplinary rehabilitation team may include the following team members:
  1. Patient and family: The patient and family are considered the most important members of the rehabilitation team.
  2. Physiatrist: A healthcare provider who evaluates and treats rehabilitation patients. The physiatrist is usually the team leader. He/she is responsible for coordinating patient care services with other team members. A physiatrist focuses on restoring function to people with disabilities.
  3. Rehabilitation nurse: A nurse who specializes in rehabilitative care and assists the patient in achieving maximum independence. The focus is on medical care, prevention of complications, and patient and family education.
  4. Clinical social worker: A professional counselor who acts as a liaison for the patient, family, and rehabilitation treatment team. The social worker helps provide support and coordinate discharge planning and referrals. He/she may also help coordinate care with insurance companies.
  5. Physical therapist: A therapist who helps restore function for patients with problems related to movement, muscle strength, exercise, and joint function.
  6. Occupational therapist: A therapist who helps restore function for patients with problems related to activities of daily living (ADLs) including work, school, family, and community and leisure activities.
  7. Speech/language pathologist: A therapist who helps restore function for patients with problems related to cognitive, communication, or swallowing issues.
  8. Psychiatrist, psychologist, or neuropsychologist: A healthcare provider or counselor who conducts cognitive (thinking and learning) assessments of the patient. He/she also helps the patient and family adjust to the disability.
  9. Recreation therapist: A therapist who coordinates therapeutic recreation programs to help promote social skills and leisure activities.
  10. 15 Audiologist: A healthcare professional who specializes in the evaluation and treatment of hearing and hearing loss.
  11. Registered Dietitian: A nutritionist who evaluates and provides for the dietary needs of each patient. This is based on the patient’s medical needs, eating abilities, and food preferences.
  12. Vocational therapist: A counselor who assists people with disabilities to plan careers and find and keep satisfying jobs.
  13. Orthotist: A healthcare professional who makes braces or splints used to strengthen or stabilize a part of the body.
  14. Prosthetist: Healthcare professional who makes and fits artificial body parts, such as an artificial leg or arm.
  15. Case manager: A rehabilitation case manager helps plan, organize, coordinate, and monitor services and resources for the patient.
  16. Respiratory therapist: A therapist who helps treats and restores function for patients with airway and breathing problems.
  17. Chaplain: A spiritual counselor who helps patients and families during crisis periods. He/she helps serve as a liaison between the hospital and the home church or place of worship.
  18. Biomedical engineer: The field of rehabilitation is an interface between the medical and engineering profession. With the advance of technology, we have newer user friendly environment control units, communication aids, orthosis and limbs. All these have to designed by electronic and mechanical engineering professionals. The role of biomedical engineer is to inter act with the physiatrist, orthotist and speech pathologist to design a piece of equipment which will be of use to the person with disability.
  19. Vocational counselor: The vocational counselor is an important professional in the sociovocational team who identifies the right vocation, skill or way of life of these patients. The skilled trainer trains the client in a particular vocation and the placement officer places him/her in suitable job.
  20. Music therapist: The intervention of the music therapist involves instrumental or vocational performance by the person with disability or helping him/her appreciates music or attends musical events. This goes a way in:
    • Helping children or adults with cerebral palsy or other paralytic conditions to improve coordination and develop gross and fine motor skills through playing instruments 16 or exercising music. Some children with Down syndrome respond naturally to music.
    • Relaxation, sedation, or control of pain or anxiety.
    • Improving speech through articulation training or melodic intonation.
    • Improving socialization skills, self-confidence, and esteem through group music activities.
    • Improving quality of life for patients in palliative care.